What Makes you Healthy?? Conventional vs Natural Medicine

GOTTA SEE THIS SHORT VIDEO about Naturopathic medicine, no mention of God by the way, at “God made dirt”…Really terrific!

What Makes you Healthy?? Conventional vs Natural Medicine.

Tortured and Thrown into the Hole. A nd Why I tell you: DO NOT APPLY FOR SOCIAL SECURITY DISABILITY PAYMENT

Ankle swollen and discolored from hours in 4-point punitive restraints the night before discharge/escape
Ankle swollen and discolored from hours in 4-point punitive restraints the night before discharge/escape

IMG_0002IMG_0004

The above is are just some bruises of many I received during my month-long course of “psychiatric treatment” at the Hartford Hospital’s Institute of Living, on the unit called Donnelly 2 South in January through Feb 2013. In  Connecticut, the Institute of Living, first known as the Retreat, and once quite famous as a posh sanatarium for the rich and famous though this is no longer true, was first made famous by  Clifford Beers, I believe, who wrote about similiar torture he underwent there just a hundred years ago in the book, A Mind That Found itself.
 (I WANT TO MAKE IT CLEAR THAT THIS WAS FROM 2013)

After burning my face with cigars and cigarettes, in response to command hallucinations, I spent the last month in Connecticut’s well-known Institute of Living (yeah the dangerous 6th month was JANUARY not February but nobody thought to check my math) being beaten up and trussed like a pig in four-point restraints almost daily for many many hours. Why did they deal me this sort of treatment? Why? Because “You do not follow directions”.

I DID NOT FOLLOW DIRECTIONS so they beat me up (despite my policy of non-resistance) and tied me, shackled me with leather and metal cuffs  to a bed for dozens upon dozens of hours.! Time after time I had to defecate in my own clothing, because they would not even give me bathroom breaks.  Get that? I was disobedient, so they shackled me to a bed as an excuse for treatment!

After this experience, I LOST ALL FAITH in the ability of any institution to do anyone any good who has a mental illness or sickness of the mind, or any emotional disorder or whatever you wish to call it. I GIVE UP! I will kill myself if anyone ever tries to send me back to such a cesspit of a place. I do not care if it is appointed like the Taj Mahal. NO ONE who works there is uncontaminated by the evil infecting such places. I may be the devil but I never wanted to be evil while they are ALL EVIL EVERY SINGLE ONE. I have NEVER been to a hospital where the people are kind and well meaning and where the treatment is actually kind and decent. Once in a while a single person, such as the Middlesex Hospital occupational therapist  Christobelle Payne, may stand out in memory as being a rare human being of warmth and dignity and  caring, but otherwise, they all to a one fail the test of being decent human specimens and all fail royally to be even normally humanly responsive to suffering persons. They are in it for the money and a cushy job, and don’t you forget it if you go into a psycho hospital, DO not expect to get well there. Expect deadening dulling drugs that never worked and the research tells so, and directions (ie ORDERS) that you HAVE To follow or ELSE.

Get out of there as quickly as possible, because your life depends on it. I am serious. DO NOT LINGER expecting care and treatment or to feel better no matter how helpful you might want it to be.

Furthermore. if you are a young person, do not listen to the sweet seductive advice that some may give you that you woul do well to go for “disability” and social security payments. THAT Is a load of total crapola and the worst thing anyone could tell anyone under the age of 40. Too many young people are being 1) told as children that they have Oppositional Defiant Disorder or ADHD, both of which are adults’ and psychiatrists’ ways of saying, “You don’t as we tell you to huh? Okay, then, we will label you mentally ill in retaliation!” But that is not the worst because they then “medicate” you young children or adolescents with Ritalin or SSRIs and if those cause the anticipated problems of irritability and anger management problems, and outburts and moodswings (!!!), then “add on” atypical antipsychotic drugs (and who would not think to themselves, in momentary awe and self-pity, “OOOh, I must really be Mentally Ill if I take an ANTI-PSYCHOTIC drug, right???”)

The thing is, they will justify these drugs with another label, a label imposed because you now have an IATROGENIC or doctor-induced, medication-caused illness,  like some version of “bipolar”, or if they really dislike you, the untreatable Borderline Personality Disorder, which only means largely that you are youngish, female and emotional and angry and don’t shut up when they want you do. (Test: Do they want you in DBT classes? Then you have the BPD diagnosis, trust me. Dialectical behavioral therapy is FOR “borderlines” no matter how hard they argue that it is open all…)

NEITHER of these labels reflect your or anyone else’s REALITY, mind you, they are ONLY labels, and neither Bipolar nor borderline have ever ever been shown to be real bona fide physiological illnesses or even (for all the talk) genetic diseases. What is a “real mental illness” anyway? No one agrees on the diagnosis, in any one person, and no one can find any chemical test or neurotransmitter than it out of balance or even an anatomic difference between the ill and the well. They only have the person’s words and the doctors opinions… If you disagree, prove what you what to argue. Do not tell me, well Manic depression “runs in the family” because that is horseshit. Messiness and not making beds can seem to run in a family, you know why? Because NO ONE breaks the cycle and teaches the kids the value of neatness and making beds every morning. It matter where and how and WITH whom you grow up, and the myths you grow up with matter just as much. The notion that  Manic-depression runs in your family is only that. A MYTH. but that doesn’t mean you cannot induce it or see it and make it real in your kids or yourself if you try hard enough.Lord knows teenaged angst these days is frequently dx’d as bipolar so jump on that bandwagon by bringing your child to a psychiatrist and they will be happy to oblige!

But do not think that your label of “Borderline” is something elevated and “nearly psychotic” as if that itself is anything superior to other MIs. Trust me, when someone else calls you Borderline it is shorthand for MANIPULATIVE, DRAMATIC, attention-seeking, devious, lying…if you like those words, go ahead and claim the diagnosis for yourself, but i doubt you will. So why do you vaunt it, and flaunt it? Do you not understand that the hospital and therapists actually hate your guts? Get a hold of your chart and READ IT. it is YOUR right and it might open your eyes to what those people REALLY think of you…It won’t be pretty or nice at all, but it will be instructive, and maybe you won’t want to be Mentally Ill with Borderline Personality Disorder any longer, hey?

Another few words as to young people going for social Security Diabilty: Someone asked me about this and my response is unequivocal. It is the very same trap that Welfare was for young mothers with too many children years ago…It had positives to it, but it ended up trapping many and many generations in poverty of the most extreme sport for, well, generations. Speaking just for myself, IF anyone had had the time to find out where my talents lay, in art and writing, and had been able to provide the community and home supports for me that I truly needed, rather than funding my rent and hospital stays largely, plus a visiting nurses visit to bring me medications. I might have blossomed and never ended up recurrently in the hospital for decades. I mean this from the depths of my broken heart. I was always an extraordinarily talented and intelligent person, and everyone knew it. At the same time, I had very real problems. But no one ever said, LET’S NOT FOCUS ON YOUR PROBLEMS. LET’S SEE HOW FAR YOUR STRENGTHS CAN TAKE YOU!

You know, I still cannot socialize  or be away from home for long, and I cannot tolerate any 4- hour work day, far less an 8-hour work day…I do not have ordinary or “normal” stamina in any fashion. Narcolepsy is partly to blame and probably the mental issues and whatever else is at fault, I cannot say. But an extreme lack of stamina that eating well and exercise daily does nothing to help is a FACT of my existence. Nevertheless, I do not believe that I had to stay on Disability and “relief” all my life and be a leech on society…No, i just had no one from the ADA or any social services (god forbid a family member or friend) looking at my individual needs and assessing what I could do to earn a living and helping me, in deep and truly helpful way.,..I believe that my life might have been very different and more productive had the AMERICAN system not dumped me onto antipsychotic drugs and social security and essentially thrown me away…

But it will do it to you too, and you are assenting to it, if you go for disability at at young age. DO NOT DO IT. You will NEVER get free from those checks. NO ONE EVER DOES, unless they marry or get rich some other way…It is the worse decision you will ever make. I know that some living situations demand a check for rent, but don’t assent to their demands, make a radical decision to take charge of your own life, CHALLENGE the psychiatrist’s diagnosis. How long have they known you for anyhow???? Challenge the pills, or at least the dosage. DO YOU FUNCTION BETTER NOW???? that is the only question that matters. If not, the pills do not help. PERIOD.  NEVER take any pill on  a “For the rest of my life basis!”

Oh, I am so angry and broken at the moment that I cannot speak more. But if I can later on, I will say more to explain. At the moment, I have to attend to too many PHYSICAL bruises and to find a way back to sanity on my own, having  been driven to the brink of near extinction by one of the best known hospitals in this state. At the moment I am both rigid with rage and so confused and broken that I scarcely know how to continue, or whether I even want to. Why bother? Why bother? How can people be such  monsters, and in such monstrously powerful places and ways. I hurt so deeply and feel I will never trust an single person ever again when they say, “Come let us help you. You need our help.”  YOUR help? Like being raped, I need your F—ing help!

GO jump in a lake of snot is what I should say to all of you so called helpers. I’d rather die. Go F— yourself.

It’s the children the world almost breaks who grow up to save it.

Pamela Spiro Wagner:

As I wrote to Simon, Wow. Simon, Just WoW!

Originally posted on Liberian ME:

“You have to write the book that wants to be written. And if the book will be too difficult for grown-ups, then you write it for children.” ― Madeleine L’Engle Children see magic because they look for it.” ― Christopher Moore “It’s the children the world almost breaks who grow up to save it.” ― Frank Warren DSC01019DSC00982DSC00974DSC00956DSC00953DSC00986DSC00943DSC01030DSC01011DSC00965DSC00936DSC00934DSC00953DSC00956DSC00974DSC00982DSC01005DSC01019DSC01022DSC01028DSC01035DSC01037DSC01078DSC01080DSC01015DSC01081DSC00428DSC00923DSC00926DSC00929DSC01019DSC00982DSC00974DSC00956DSC00953DSC00986DSC00943DSC01030DSC01011DSC00965DSC00936DSC00934

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10-Year-Old Nigerian Girl Top in UK University Mathematics!

Esther-Okade-200x150

Just thought this, from allAfrica.com: Nigeria, should be publicized as proof positive that girls can do just as well as boys in math…and maybe better, when they are not discouraged or told they have “math anxiety”! Go for it, all you ten year old University-bound young girls!

allAfrica: African news and information for a global audience

via allAfrica.com: Nigeria: 10-Year-Old Nigerian in UK Varsity.

Ten year old Esther Okade, one of UK’s youngest students from Nigeria, has been accepted to start her maths degree at the Open University. Esther, who enrolled three weeks ago, is already top of her class, scoring 100 per cent in a recent test.

Esther’s mother, Efe, said the process of applying to the university was ‘an interesting one because of her age.

she said “We even had to talk to the VC and after they interviewed her, they realised that this has been her idea from the beginning. From the age of seven Esther has wanted to go to university.

“But I was afraid it was too soon. She would say, ‘mum, when am I starting?’, and go on and on and on. Finally, after three years, she told me, ‘mum I think it is about time I started university now.”

Esther applied in August, and after a phone interview, an essay and a maths exam, she finally got the news in December that she had been accepted onto the course.

Though she watches cartoons and plays with barbie dolls, Esther’s aim is to get First Class honours degree in two years and start a PhD programme. She also intends to run her own bank.

New Art from Pamela Spiro Wagner

These are two very different paintings, clearly…The top one is the one most people like. For obvious reasons, as it causes less pain…I did it for them. The bottom one is about me…but no one likes it though I don’t care. Both are for sale if anyone is interested. Please get in touch with me by email or comment box to discuss price and shipping…

A Murmuration of Starlings with '32 Chevy (free hand copy in oil paint of oil pastel drawing I did at Retreat and gave away)
“A Murmuration of Starlings with ’32 Chevy” (free hand copy in oil paint of oil pastel drawing I did at Brattleboro Retreat and gave away)  c. 16″ by 12″ oils on prepared paper)
Spewing evil into the world. (Reworked)
Spewing evil into the world. (Oil on canvas  30″ by 24″)

A Response From Barbara Ortiz Howard: Now Let’s get that “Womenon20s” site to go VIRAL!!!! Yay!

Lyda Conley
Lyda Conley

I suggested Women on 20s add Lyda Conley, about whom this much is known:

Eliza Burton “Lyda” Conley (ca. 1869 – 1946) was an American lawyer of Native American and European descent, the first woman admitted to the Kansas bar. She was notable for her campaign to prevent the sale and development of the Huron Cemetery in Kansas City, now known as the Wyandot National Burying Ground. She challenged the government in court, and in 1909 she was the first Native American woman admitted to argue a case before the Supreme Court of the United States.

Barbara said she would add Lyda to the “Hall of Fame” once the campaign steadies, then I asked if I might post her response. She edited and said, “Yes.” So this was her response and I think it is important to read and understand where she, et al, were coming from in the original Women on 20s campaign to get a woman’s image on the 20 dollar bill:

“Dear Pamela,

Thank you so much for your blog post.  I just wanted to take a moment to clarify some things so that our campaign is best understood.

Actually, we never said we were unable to find Native American or Latinas.  And it wasn’t just two women that developed the “slate”   With so many women to chose from, we needed a way to evaluate the over 100 possible candidates.  We came up with a method that scored candidates on a scale of 1-10 based on two criteria.  The first criteria was the candidates’  impact on society which was weighted more heavily than the second criteria , obstacles they had to overcome to achieve their goals or if they were a pioneer in their field.    We had a “caucus” of  approximately 100 historians and professionals weigh our candidates along these lines    We did not arbitrarily select anyone specifically for their ethnicity, sexual orientation, preference or race.  The only factor was that they be an American woman, which we realized in the process had to be deceased for at least two years.  This is explained on the website page:http://www.womenon20s.org/the_process and a list of 15 runner ups can also be found there.

 We certainly did want to have Latina and Native American Women on our slate.

Gloria Anzaldúa, died a few years ago, very beloved and influential feminist.  Luisa Capetillo, a lesser known socialist Puerto Rican feminist from early 20th century. Cristina Mena was not quite a feminist, but early 20th century Mexican American woman writer. Other earlier figures include Jovita Idar and Maria Ruiz de Burton.  All of these women were great, but none of them really met the base criteria.  Had we had a criteria that said that we must have a Latina for just the reason she is a Latina, we would have jeopardized the entire campaign for what would be seen as tokenism. As a Cuban American woman, I did want a Latina badly to be on our list.  For me, I am taking great pride in many Latinas that are leading the way and are still serving our nation and will surely be remembered for all their efforts to help create a more equal and fair nation, dozens including Sonia Sotomayer, Martha Cotera, Dolores Huerta and am so happy that they are leading the way today still.

As for Native Americans,Wilma Mankiller emerged from the dozens to the top 30.  Her impact was huge to a smaller group, albeit a key constituency and one which this very campaign hopes to heal in some way with the removal of a person responsible for the death and suffering of tens of thousands, indeed an entire people.   Sacagawea, also was named two years ago on the list to be considered, but did not make it through, not because she was on a coin, as that is but another form of tokenism , but because her impact was not as significant as the contributions of others.

We can have just so many women on our list.  If you find a glaring omission, please let me know

We are hoping that all this dialog can insure that we are equal sisters, in every wayl.  This is not a beauty competition, nor any competition at all.  We are also hoping that we can have a place on our site as a Hall of Fame for all sisters.

Yes, many are left out, because we have just so many we can nominate. Thank you

Barbara Ortiz Howard

Stay in touch and get out the vote so that at least we can have our voice heard !

Barbara”

Barbara Ortiz Howard

www.womenon20s.org

facebook.com/WomenOn20s

twitter.com/WomenOn20s

Put a Woman on the Twenty Dollar bill and make “Women on 20s” go Viral…but FIRST:

I love the idea that the two founders of the Women on 20s website want to put a female face on the twenty dollar bill, arguably the most used greenback in American paper currency. And I love all of the candidates they have chosen for the slate. But what I do not like is that they claim to have been unable — unable?! — to find qualified Native American or Latina women who might also be placed on the slate to be  voted on.

 

A woman for the 20 dollar bill?
A woman for the 20 dollar bill?

 

 

 

 

I don’t believe this for a second. Do you? Come on folks, help me, let’s do some research. Will you help me find the names of some Native American Women, and some Latina Women from the past (the ONLY necessary claim is that they must be deceased) that I could offer the owners of the Women on 20s site so the voting could really be fair to all? Otherwise this is discrimination all over again, and to groups that just get screwed again and again.

 

PLEASE Help? Then let’s get that site to go VIRAL for real! (I will put the link here next time, after we put our thinking caps on and get Native American and Latina names together to present to the site owners.) THANK YOU EVERYONE.

New Art from Brattleboro

Art is all in reverse order of when it was done. If anyone is interested in buying, let me know. (Only some are for sale. Others are taken or donated already.)

Nevertheless, this expresses how I feel these days...
Nevertheless, this expresses how I feel these days even though it is  not a self portrait…
Paper and Cloth Mache table I made for my living room...
Paper and Cloth Mache table I made for my living room…
Sketch for painting that follows  - Jason is one of the best neighbors i have had!
Sketch for painting that follows – Jason is one of the best neighbors i have had!
Jason Mott, "The Mottster Rocks Out"
“The Mottster Rocks Out” — My downstairs neighbor entertaining me, unwittingly, but to my delight, every night, as he practices his drumming!

 

Translucent Papier Mache Bowls
Translucent Papier Mache Bowl

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Actually, all the above was done in my apartment in Brattleboro, after I moved there. What follows was done before I moved here. Either in the interim, in Sheffield, or while I was looking for a place and living with a friend in CT.

Central American Welcoming Madonna, in gouache and acrylics c. 12" by 8"
Central American Welcoming Madonna, in gouache and acrylics c. 12″ by 8″
Face Seen on Wastbasket and captured in a mask made of brown paper...
Face Seen on Wastebasket and captured in a mask made of brown paper…
Second Eyes Mask
Second Eyes Mask, made at the Retreat, pre-formed mask enhanced with paper mache and collaged with eyes and other papers…
Mask of Eyes Made at the Retreat
1st Mask of Eyes Made at the Retreat
Jute Bowl
Macrame Jute Bowl, made of brown paper and edged with copper tape

Article That Won’t Be In the Hartford Courant…2015!

I moved to Brattleboro Vermont on February 4, 2015, leaving my home state of Connecticut where I’ve lived for nearly 60 years. l had to move because of the horrific psychiatric abuses I experienced in Connecticut hospitals and my fear that if ever I were hospitalized again I would be killed.

 

I feel guilty, however, just getting out without accomplishing something to stop what continues to happen in Connecticut psychiatric units and hospitals.

 

The experience of mechanical four-point restraints – leather cuffs that are tightened around the wrists and ankles to immobilize a patient to a bed – or being isolated by force in an often freezing seclusion cell is almost universally terrifying. Nevertheless, both cell and/or restraints are routinely employed to curb loudness and undesirable behaviors at the Hospital of Central Connecticut on Grand Street in New Britain. I know this because I was subjected to both seclusion and restraints multiple times in the spring of 2014, despite a diagnosis of chronic paranoid schizophrenia, as well as PTSD that was triggered by precisely this sort of thing.

 

Bizarrely, the hospital psychiatrist, Dr Michael E Balkunas, treating me at HOCC challenged my PTSD diagnosis. “Patient misperceives her treatment as traumatic,” he wrote in my chart. Well, maybe so, but I don’t know how I can be accused of misperceiving three entire days callously abandoned alone, tied to the four posts of a metal bedstead at U-Conn’s Dempsey Hospital (for trying to escape the locked unit) as anything but brutality, even if it was in the 1990s. I also think it is nearly by definition traumatic to be forced to defecate in one’s own clothing while tied to a bed which is what they did at Hartford Hospital’s Institute of Living in the winter of 2013. This was after I was told to lie down and place my own limbs in the leather cuffs (“as a consequence but not a punishment”) for walking away from the very same “Side Room” that I had just been assured was “not a seclusion room unless you call it a seclusion room.”

 

Again, maybe I misperceived being grabbed and held face-down and nearly suffocated numerous times by staff at Yale Psychiatric Hospital in August 2013, who injected 10-20 milligrams of Haldol, a known drug of torture. Maybe this was just kindliness that I misunderstood as traumatic, maybe it was merely a “psychotic misperception” on my part? Maybe, and maybe not.

 

Nevertheless, the fact remains that in the ED of New Britain’s HOCC, a security guard in May 2014, grabbed me by my left shoulder immediately after he was warned by the nurse that it was my left shoulder that had a rotator cuff tear.

 

My New Britain chart records that I was admitted to that hospital, and to the IOL and others with a detailed Psychiatric Advance Directive, the first page of which states that seclusion, four-point restraints and forced medication invariably result in regression to “primitive states and severe worsening of symptoms.” It also makes several concrete suggestions how better to deal with me when I am upset. Even though I spent many hours on this document, Psychiatric Advance Directives have no legal clout in Connecticut and doctors can and do ignore them freely.

 

Perhaps because of this, HOCC staff literally forced me (“escorted me”) to seclusion and/or restrained me again and again. They took to stripping me “for safety’s sake,” and even though I put up no resistance, they had the male guards spread-eagle my limbs while still naked and put restraint cuffs on without even covering me.

 

Is it any wonder that what resulted was someone who would wash her hair in her own urine, defecate on the floor of her room and smear feces on the wall? Yet Dr Balkunas, the director of W-1, the general psychiatry unit at HOCC claimed that my trauma was imaginary. Why? Because treatment cannot be traumatic. He simply never got the connection between my horrendous decompensation and his so-called “therapy.” Maybe he never appreciated that he was torturing me, like a person who ripped the wings off butterflies as a child. Someone like that would not have understood how those creatures suffer either.

 

 

Google Review of Michael E Balkunas, Unit Chief of W-1, Adult Psychiatry, Hospital of Central Connecticut

NOTE: THIS may be Dr Michael E Balkunas’s forgotten relative, also apparently an MD or he plays one on TV, I dunno! All I know is that the men look amazingly alike!  They could be cousins like the twins on that Patty Duke show many many eons ago…What is important to remember is that they DO share a certain number of aberrant genes, and I believe that one of theirs leads to sadism…

(Note that My GOOGLE Review (edited)  follows)

How very similiar Michael and Charlie look...and and no wonder, since they share the same sadism genes!
How very similar Michael and Charlie look…and and no wonder, since they share the same sadism genes!

In May 2014, Michael E. Balkunas, MD, chief psychiatrist of the W-1 unit of the Hospital of Central Connecticut in New Britain, angered by my rejection of him because I could not speak (he refused me the use of any writing materials) decided to diagnose me with Borderline Personality Disorder despite having asked for in-put from my family and my outside psychiatrists who all stated that no such BPD or any PD symptoms ever existed. He did this despite my having been admitted with a decades-long Axis 1 diagnosis of paranoid schizophrenia (and with PTSD since 2009 due to hospital brutality and abuses).

I believe he added the PD diagnosis in order to justify the implementation of an inhumane Behavioral Treatment Plan which resulted in four-point mechanical restraints and the use of a horrific  and freezing seclusion cell. As my Advance Directive stated clearly, even at the time, none of these modes of “treatment” in the past  ever led to anything but disaster.

At HOCC I was repeatedly secluded and even restrained, naked in a spread-eagle position, in 4-point leather cuffs for many hours, yet never was this because of any behavior indicating “imminent danger of causing serious bodily harm to self or others” as the Centers for Medicare and Medicaid require. They did this to me always and only because I was too loud, or because I disrupted the unit “milieu.”

Before I was double-locked into one of W-1’s soundproof isolation cells, the nurses might have the male security guards strip me naked “for safety’s sake.” No matter how compliant I was, they always injected me with three “punishment drugs.” Even when I said I would take them orally or offered my arm, they could choose to push me onto my face on a bare mattress, forcibly hold me down until I couldn’t breathe, and administered them in my buttocks.

I informed the guards about CMS rules regarding appropriate uses of seclusion. To their credit they seemed taken aback, but in the end they were always willing to follow orders and to inflict pain in order to ensure my rapid compliance.

Dr. Balkunas insisted again and again on the diagnosis of BPD yet he never treated me with any modality but antipsychotic drugs and never wrote about my exhibiting any BPD symptoms in his notes. In fact his whole stated rationale for starting commitment procedures to the Connecticut Valley State Hospital was that “antipsychotic drugs take time to work.”

The staff of Nurses and Mental Health Technicians at New Britain General Hospital W-1 and most certainly Dr. Michael Edward Balkunas, Adult Psychiatry Unit Chief, must to be re-educated about the evils of employing punishment or torture in mental health care. They should be given, in addition, many hours of intensive in-service training on trauma-informed treatment. But frankly, as a penalty for the extraordinary and sadistic abuses they long inflicted (knowingly with impunity) upon the mentally ill taken into their care, they deserve nothing less than to summarily lose their jobs and their licenses to practice — for good.

Listen Up Collage -- A message more than art.
Listen Up Collage — A message more than art.

Skip the waiting room by visiting doctors virtually

Pamela Spiro Wagner:

The site won’t let me sign up or comment so I am reblogging this and commenting at my site:

This Healthtap App is actually rather useless for those of us in long waiting lists for PCP care. Since you have to have an actual PCP to do Gutman’s virtual Concierge consultation, what good is the health tap app for most of us? Health tap basic refuses to answer any personal questions anyway…And what if this PCP doesn’t have the time to see us virtually at any time of day we demand?? ? Why would they with a flourishing and already busy in-office practice? I think the idea of virtual consultations with available on-line docs and specialists has tremendous potential, and could have safeguards built in, but to demand a prior face to face relationship just ties the hands of anyone who really needs health care. I live in rural Vermont where all the clinics have long waiting lists, one, and two it is very difficult for me, who has difficulty driving distances, to get anywhere…Virtual consults would solve MANY problems, but alas Health Tap’s solution is not there yet (possibly not its fault, but it is not the answer yet, not in its present form).Unfortunately, and I am ordinarily pro-regulation, but maybe not in this case, I think the earlier version of Health-Tap where you could pay a dollar or two to ask more detailed questions of available online docs for the general readership’s benefit, was more effective and helpful, than this trying to do too much that the government at present does not permit. The new Health-tap doesn’t seem to get anything quite right at the moment, alas. I know this will change. But is frustrates anyone wanting to try virtual medicine and being stymied at all corners..

Pam Wagner

Originally posted on Fortune:

Sitting in the doctor’s waiting room is all about masochism. You’re sick, you’re waiting, and you’re surrounded by people who are hacking and sneezing.

Ron Gutman, CEO of HealthTap, envisions a world where people can meet their doctors from the comfort of their own homes—virtually. Last week, his app, HealthTap, rolled out a new service that lets users consult virtually with doctors for $44 a visit.

Virtual healthcare remains a nascent market. Only 10 million of 1.2 billion annual doctor visits are done virtually, according to research firm IHS. The number of virtual consultations are expected to double by 2018, but that still leaves a lot of room for more. IHS estimates that one-third of all doctor visits could be handled virtually.

[fortune-brightcove videoid=3867608779001]
When it first launched, HealthTap let patients tap into a network of 60,000 doctors and text them a question for free. A premium subscriber service let…

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Rashid Taha: French Algerian Protest Singer/Songwriter Says “Bonjour”!

* Thanks and a hug to my new and dear friend in Iraq, Sami, for my introduction to some wonderful new music, from the one who wears glasses and has a big grin:  8D

Lyrics of “Bonjour”:

Hello Kitty, Bonjour violente femme

Bonjour Grace Kelly, Bonjour madame

Hello Superman, Bonjour solitaire

Bonjour tous les jours tout l’envers

[…]

Ola l’amour, Bonjour la fontaine

Bonjour le dernier, Bonjour la graine

Bonjour sur les fesses, Bonjour la neige

Ola le systeme, Bonjour le revers

[…]

Hello Kitty, Bonjour violente femme

Bonjour Grace Kelly, Bonjour madame

Ola l’amour, Bonjour la fontaine

Bonjour le dernier, Bonjour la graine

[…]

Bonjour, Bonjour, Bonjour, Bonjour, Bonjour…

Hello Kitty, Bonjour violent femme

[…]

Bonjour Grace Kelly, Bonjour madame

[…]

Hello Superman, Bonjour solitaire

[…]

Bonjour tous les jours, tout l’envers

[…]

Ola l’amour, Bonjour la fontaine

[…]

Ola le systme, Bonjour le revers…

By the way, the following is Google’s English version, for which I take absolument aucun credit! i.e. I take no credit for it whatsoever…)

“Hello Hello violent woman

Grace Kelly, Hello Hello Mrs.

Superman, lonely Hello

Hello every day to all

[…]

Ola love, the fountain

Hello Hello last Hello

Hello seed on the buttocks,

Hello snow Ola the system,

the reverse Hi

[…]

Hello Kitty, Hello Hello violent woman

Grace Kelly, Mrs.

Ola Hello love, the fountain Hello

Hello latter Hello seed

[…]

Hello, Hello, Hello, Hello, Hello …

Hello Kitty, Hello violent woman

[…]

Grace Kelly Hello, Bonjour madame

[…]

Hello Superman, lonely Hello

[…]

Hello every day, all to

[.. .]

Ola love Hello fountain

[…]

Ola system, Hello setback”

From original article in RFI Musique 2009

________________

Rachid Taha says “bonjour”

A protest singer never dies

 

http://www.rfimusique.com/musiqueen/articles/119/article_8289.asp

Paris

09/11/2009 -

Globe-trotting rocker Rachid Taha has been flying back and forth between Paris and New York, making his eighth album with Bowie’s old producer Mark Plati. Bonjour is an album full of sparky guitars and positive vibes, the fruit of a spontaneous collaboration with Louise Attaque frontman Gaëtan Roussel. Taha, who plays L’Olympia in Paris on 10 November, talks to RFI Musique about the genesis of his new album and his thoughts on the government’s immigration policies.


RFI Musique: Why such a simple, naïve album title like Bonjour?
Rachid Taha: I called my album Bonjour – “hello” – because people have more or less stopped going round saying “hello” to one another. Even when they do say “hello”, it’s a purely functional greeting, it rarely comes from the heart. People in France are always rushing up to kiss one another on the cheek, but it’s a purely formal gesture that lacks any real depth or generosity. What I’m trying to do is reinstate “bonjour” to its rightful status, make the exchange of “hellos” a gesture full of warmth and human kindness. I want “hellos” to last and to mean something, like when you say “hello” in Africa and you take the time to talk about what’s going on in the village, what’s happening with friends and people you’ve loved who’ve disappeared, what’s going on with the kids…

How did you come up with the idea of working with Gaëtan Roussel?
I was having a few drinks in a bar in Ménilmontant! And I got to thinking about the song Bonjour. Anyway, to cut a long story short, I asked Gaëtan if he’d write a French version of the song while I wrote one in Arabic. At the end of the day, I preferred his version so we kept that and I added my lyrics. Everything happened so smoothly that I thought “OK, maybe we should take this collaboration a bit further now?” It was a question of feeling really, the right vibe passed between us and that’s how Gaëtan ended up acting as a sort of producer on the album.

Do you think Gaëtan Roussel added a new edge to your sound?
Yes, he did and that’s one of the reasons I wanted to work with him in the first place. I spent many years collaborating with Steve Hillage and then I felt the need to change tack and move on to something different. I loved the work Gaëtan did for Alain Bashung and that’s basically what I wanted from him. I was looking to him to inject a breath of fresh air, a lightness of touch, a bit of a country vibe. I wanted Bonjour to sound a bit like the sort of folk album made by Bob Dylan, Elvis Presley or Ry Cooder. I’m a big Ry Cooder fan!

You recorded part of your new album in New York with Mark Plati who took care of mixing and arrangements. What did he add to your sound?
Mark’s worked with a lot of people over the years like David Bowie, Alain Bashung and Les Rita Mitsouko… I’d say he introduced a bit of an urban rock feel on certain tracks. It was thanks to Gaëtan that we ended up in the studio with Mark and it was a brilliant experience. I’m really into the idea of travelling and exchanging ideas with people. I believe you have to reach out and look elsewhere if you want to vary your sound. I’m not into the idea of putting out the same album over and over again. Music’s like food in that respect – I’d never dream of eating the same thing every day. I don’t want to make myself sick or turn anyone else’s stomach by churning out the same old thing time after time!

On This is an Arabian Song, you and Bruno Maman sing “N’oublie jamais”(Never forget.) Never forget what?
Never forget the world’s problems. Never forget wars, genocide, poverty, misery, never forget the past… I’m not into the idea of nostalgia but I think it’s important to take responsibility for the world. You have to take responsibility for your behaviour towards others. And you have to be aware of the past. It’s only by reaching down to your roots that you can stand tall like a tree.

Where do you stand on the current debate about French national identity launched by the French immigration minister Eric Besson?
It takes me back 25 years, back to the time I recorded Douce France… The thing is the young generation are much more tolerant now than they were in the eighties. Everyone’s got Moroccan, Algerian, Portuguese and Senegalese friends these days. Why does a minister like Besson have to go round stoking up old hatreds if he isn’t trying to win National Front votes before the next election? Funnily enough it was Besson who revived the idea of DNA testing to crack down on immigration. That man is not living in the real world or he wouldn’t come up with such hypocritical solutions. And to think he was once a Socialist!

Bonjour

Rachid Taha Bonjour (Barclay) 2009
In concert at L’Olympia, Paris, 10 November 2009.


Fleur  de la Haye

Translation : Julie  Street

Pammy S.W my Heroine mindful of her Schizophrenia diagnosis

Pamela Spiro Wagner:

Well, i hardly know what to add to these undeserved accolades, except to encourage trafffic at Marie’s site! She is a terrific mental health advocate and amazing person in her own right. Go take a look!

Originally posted on Marie Abanga's Blog:

Pammy herself Pammy herself

How it all started

I recall my post on who is a simpleton? I detailed my friendship with with massa Gaby, and although I don’t know what or if he was ever diagnosed with any mental illness (hardly the case back home you know – you go lun and you are abandoned by your family and all to roam the streets as you please), I see a lot of schizophrenia symptons there now.

When I became more active in the mental illness world, one of my first friends (now a precious member of my dear e family), was none other than Pammy as she is fondly called. Please, do yourself literary justice and read her about me page to understand once and for the umpteenth time that psychiatry destroys more than it helps and heals so far.  Why let people with so much talent deteriorate so far…

View original 570 more words

Don’t Worry, Be Happy, and Dance, Cry, Hum along!

 

If this doesn’t make you happy, I am very sorry…I myself despite a massive migraine and fears of vascular bleeds found mysefl directing a virtual orchestra in the midst of my pain and by the end, PooF! magically it was GONE! Miracle of miracles!

8D

Photos of Vermont Cottage, and of the Artist, Herself

I thought I would post a few pictures of where I have been living these past few weeks, both how it was this past summer and what it looks like now. And me, too. Since most of you likely have no idea what I look like unless you have read DIVIDED MINDS and of course those photos, the most recent in them, was the author photo taken some ten years ago in 2004.

Carriage House Kitchen area summer 2014
Carriage House Kitchen area summer 2014

summer 2014

Dining/arts area of carriage house Summer 2014
Dining/arts area of carriage house Summer 2014

The above photo is the cottage kitchen area and dining/arts area as they were this summer, before I brought all my stuff up here. It was much less cluttered then and lighter! Below photo is the dining and “arts” area where Lydia and I did our artwork and where most of Dr Geuss was made…

The next photo is from the summer, me holding the brown paper beginnings of Dr Geuss (actually this was when Lucy Goosey was rather far along…(trust me! ) Nevertheless if you look hard enough you will see that I am just holding the wings on — I have not yet figured out how to secure them.

Pam with Lucy Goose  (Dr Geuss-to-be)
Pam with Lucy Goose (Dr Geuss-to-be)

As it turned out what I decided to do was to drill a hole through each wing, after Lydia and I painted them, a hole right through a painted dot, then a hole into the body (I think we decided to drill maybe three holes per side about a quarter inch in diameter. ) I sawed chopsticks from supper the night before into little dowel pieces maybe 2 inches long, then I pushed the chopstick dowels into these holes, along with glue, thereby attaching the wings permanently to the body. I thought it was a rather ingenious if not elegant solution to the problem, especially as glue and papier mache solution itself was not going to hold them in the position I wanted.

The only other way I had solved this sort of problem before had been in the out-held arm of Dr John Jumoke. Then I just “smooshed” and actually used Plaster of Paris, which I would not do again. Gypsum (P of P) would just have added weight to the held out wings of the goose, which would not have been good, nor for a sculpture that by its very nature needed to be easy to move.

Anyhow when I was done, I was very pleased when I offered it, through Cyndi my therapist to the Human Services Department in Vermont’s Northeast Kingdom (St Johnsbury) and they were nice enough to accept it.

This was not a given. Hartford’s Children’s Hospital had refused two sculptures on the pretext that they were a “fire hazard” even though for the two days they were on display there apparently they were wildly popular.

Pam with Dr Geuss in NEK Human Services Dept -- Children's Area

Well to finish out this saga, the photo of me with Dr GEuss above is in the children’s department where it started out, but apparently the kids wanted to “ride” it so instead my therapist there who is artistic herself made a lovely table for it, and they put it out in the front reception area for everyone to see. I was thrilled to see this when I came back and first arrived there for an appointment from The Care Bed.

Mt Harmony Farm Carriage House 2014 Summer
Mt Harmony Farm Carriage House 2014 Summer

The building (above) is the carriage house (or cottage) I live in, as it was last summer. The sooty part of the wall is from the pellet stove, which I am using now in the winter with great satisfaction. But even though it was nearly 0°F last night I still prefer to bundle up in clothing than to use a lot of pellets or keep the house too warm and get a headache! So I keep the stove at “1” rarely even a “2” and have not yet even turned on the upstairs electric heat…On the left, behind the bent door, is the “garage” where the farm and snow clearing equipment are kept…

This next photo is one I snapped not at all by accident of the white donkey, who looked to me just like a unicorn peering from behind the trees! I love this picture because it captures the magic of the past summer and why I fell in love with the NEK and Sheffield and this farm and its owners, Marc and Steffi, and VERMONT!!!!

Unicorn Heres loooking at you

I can’t recall if I posted these next few on Wagblog or only on FB but here is the farm after our first snowfall a week ago (actually it was not at all our first at all, only the first big one I was present for). We had a foot of snow at Thanksgiving again and more last night on top of this apparently unnamed “mountain”!

Snow in November at Mt Harmony Farm!
Snow in November at Mt Harmony Farm!
Mt Harmony Sheep in Snow November 2014
Mt Harmony Sheep in Snow November 2014
Farmhouse and sunrise on snow in Vermont 2014
Farmhouse and sunrise on snow in Vermont 2014

Finally a few photos of Wag herself in her new Vermont digs, doing her “thang.”

Pam at table drawing a small sketch before she starts painting

Pam Wagner Nov, 2104

(below)

Pam dressed to the nines and pretending to paint for the camera…In reality I never change out of my grungy gray tee shirt and jeans, and would never paint in such good clothing!

The Artist, dressed to nines and pretending to paint for the camera!
The Artist, dressed to nines and pretending to paint for the camera!
Pam Wagner with new 6" square oil painting based on Don Miguel Ruiz book, THE FIFTH AGREEMENT
Pam Wagner with new 6″ square oil painting based on Don Miguel Ruiz book, THE FIFTH AGREEMENT

Pam displaying results of her oil painting adventures, a picture based on a a very short book that means more to her than almost any other, THE FOUR AGREEMENTS by Don Miguel Ruiz and his newest, written with his son, THE FIFTH AGREEMENT…

Painting is “Sometimes a Dreamer has a New Dream”

In Recliner, reading about artist, Alice Neel
In Recliner, reading about artist, Alice Neel

Above is Pam in recliner in Vermont cottage, reading about one of her favorites artists, Alice Neel…

Pam, drawing in  recliner
Pam, drawing in recl

Drawing in recliner

Cooking up a storm with T=day leftovers, nov 2014
Cooking up a storm with T=day leftovers, nov 2014

(Above) Kitchen area in winter time….Pam W cooking, late at night in November, 2014

You can see that since I came back from the summer it has gotten a lot more crowded….I brought as much as I could pack into a 14 foot truck and gave everything else away. Which was a lot. I donated ALL my furniture to FreeCyclers, including my bed and my recliner. ALL my books went to a teacher at the Cheshire Correctional Institute or their library, except a few precious ones, including the Alice Neel volume. And most of my other items except for art supplies and art work, and cold weather clothing and a few expensive items I knew I would not want to have to purchase anew. But most of my things had been bought at thrift store to begin with and many years ago to boot, so it would have cost more to lug them with me to Vermont than to buy them again, used, once I got settled there.

All the furniture that you see was there when I got here and belongs to the owners, Marc and Steffi. Of all that you see, only the artwork on the walls, and the easel, and the white floor three-bulb lamp are mine…

Frankly I would love to “downsize” even more than this, but do not know how (except for clothing, which is all used and while I like what I have I NEVER wear it)…I have used nearly everything I brought with me, and if I have not, it is only because Marc and Steffi have something here. However, when I go somewhere else, which may NOT be fully furnished, I know I will be glad that I did not toss everything in a fit of pique with “stuff”.

Sorry about this mundane post. I needed to make these photos for my mom, who is experiencing dementia and may not even quite know where I am. I did make taped phone calls that go out to her every night at the same time, telling her that I love her and am moving to Vermont, but I have not been able to contact her “in person” otherwise, since I cannot call her and she is no longer able to do email . So I will write her a letter and enclose these photos. I figured why not also show them to my readers…(and I hope not bore them to tears at the same time!!!

8D

Love,

pam

Papier Mache Art and Recovery: An Update on Thanksgiving 2014

I wrote some or most of this in 2009 but I want to rewrite and update it..

Art, capital A, saved my life. It did more than that. Art gave me a new life, new hope, and something to get up for in the morning. It’s not that I’ve stopped writing. But I had been writing in a vacuum for a long time and needed an outlet for my creative urges that involved more than just my brain. Oh sure, writing involves the hands, too. But not in the way I mean. What I needed was, well, what do I mean? In some sense I needed more activity, if only because my poor brain shuts down and goes to sleep whenever I read, and it simply capitulates to narcolepsy whenever I am sedentary. I have indeed tried standing up while reading and writing, but this doesn’t work for someone whose feet swell very easily. And I find that standing up is just more distracting than anything.

But also  I felt an intense to make things, create objects or works of art that could be seen and touched and even smelled and if scratched or thrown to the ground, heard. I had no idea in 2009 that in 2014 I might even write a couple of rap songs before I succumbed to the impulse to retreat into self-imposed total mutism. If I were VIncent Van Gogh, I might even want to taste my art, but I will try to stick to real culinary arts when that urge overtakes me as I do not at the present time wish to be poisoned by cadmium red etc. Nevertheless, despite my lifelong love for words, I still wanted to create something physical, not just an imagined  or recalled world in words, however long-lasting.

I have always needed to work with my hands. I once wrote a poem called Hand Hunger which some silly psychoanalytic candidate insisted was sexual rather than seeing the references for what they clearly were, to making and creating and building with the hands, to MANUAL LABOR and not to — (sheesh!) masturbation! I mean, how stupid and dim can you get?

Anyhow, I needed to make something or do some sort of craft or artwork. Fearing/Knowing that I could not do “real art,” (YASS,that was ME only a few years ago, telling myself that I could never paint a face! Listen up all ye who think YOU can not  do art!) that I was not the stuff of which true artists are made, I always gravitated towards the crafty side of things. (But pray tell, what stuff is that, Pamela?)

So even when I – on a manic whim – dove into sculpture, creating that llama-in-a-day, Dolly the Llama,

Dolly the Llama at show

 

 

 

 

 

 

 

the result was mostly folk art, which is to say, unsophisticated, rustic, and at best a craft-like work. Sure, I was pretty proud that I’d made a lifesize animal that actually stood up firmly on its own four legs. But with a deli-container-head (underneath the papier mache) and huge mailing tube body, scarcely concealed, big enough to have once held a large amateur telescope, it didn’t look much like a llama. In fact, the result was not much more than that tube covered with a few layers of paper and glue, and all of it painted red. Nevertheless, I was happy enough with “Dolly the llama.” I have to confess though that it took me a entire year after the psychosis and mania were treated to finish her. Her saddle blanket have fooled many into tugging at the finge to see if it is real or not. a trompe-l’oeil — eye fooling — success that pleased me no end.

But a year-in-the-making was too much time to complete a craft or artwork, even a life-size llama. I came to dread the work by the time I got to applying the last few strokes of paint. You really need more drive than that to do art, but I didn’t seem to be able to sustain the energy or enthusiasm for much of anything. in fact, I’m not at all sure how I managed to write even my part of the book DIVIDED MINDS given those obstacles.

Then, during my hospitalization in 2007 it seems one obstacle was overcome: on Abilify plus the Abilify-tempering Geodon I suddenly had both energy and stamina* (see bottom of post for a later 2014 discussion of this). Or perhaps it is simply that the medications enabled a “well me” to come out, someone who could sustain an artistic effort, even if it was for the very first time. Given a different life I would have been doing this sort of thing all along had I known it was possible, had I had that kind of stamina… But I didn’t think about this, no, for me there was no looking back.

What I did not know at the time I wrote those words back in 2009, or at least  the connection I was unable to make, was that I had actually been on that same antipsychotic drug combination for a several years before this sudden transformation. But in late 2007, however, a small vascular malformation in my frontal lobe hemorrhaged. This was a small bleed, to be sure, but I later felt and some doctors have also agreed this was not impossible, that the timing was such that the bleed itself might in some sense have been responsible for the sudden production of Decorated Betsy

Decorated Betsy: Lifesize Papier Mache

 

 

 

 

 

 

 

 

 

and as my new-found compulsion to do art as well as the felt inability to stop…

 

Since that time I have jokingly said, “Well, a little brain damage (in the right place) never hurt anyone.” Of course, that is indeed only a joke. because brain damage almost always DOES hurt people. But in this case it seems to have wrought a miracle in my life.

 

 

Over the years since Dec 2007,  I have created many pieces, large and small, from bowls to two large tortoises and two geese, even a  “crazy fruit” bowl. Also a large seated man, a child detachable from her hassock (not quite finished) and several small birds. My female sculpture, the Decorated Betsy, even won a NAMI national contest on creativity and mental illness. But why tell you about them. I will upload a few photos instead.

I am going to try to show you them chronologically, but without the  many bowls I have made along with way, except for a few that are particularly special to me. Note that all the sculptures incuding a few that are not shown here, have been donated to someone or some organization, However if anyone is interested in purchasing a new sculpture, I  do accept commissions.

This is the Dream Tortoise, otherwise known as Yurtle the Turtle, which is about 3 feet in diameter. It was my second animal, but my first turtle.

 

DreamTlooking up

The prescription that this brightly clad psychiatrist holds in his hand reads: Dr John Jumoke, Rx: Art, Poetry, Music.  I thought, well, that  is one shrink even I wouldn’t mind seeing!

Psychiatrist Dr John Jumoke with Rx for Art, Poetry and Music
Psychiatrist Dr John Jumoke with Rx for Art, Poetry and Music

 

Trudy, papier mache child seated on paper mache hassock
Trudy, papier mache child seated on paper mache hassock, donated along with Dr Jumoke to Otis Library in Norwich CT.

 

Crazy Fruit Bowl with Mini-Melon
Crazy Papier Mache Fruit Bowl with Mini-Melon

 

Papier Mache Goose for Ruth
Papier Mache “Herr Goose” commissioned by Ruth S, one of my favorite artists and mentors.

 

Herr Goose after revisitation for repairs...Click on the photo to make a close up and you will notice neck "feathers and the difference it makes with old fully decorated version.
Herr Goose after revisitation for repairs…Click on the photo to make a close up and you will notice neck “feathers and the difference between this and the no-gold fully decorated version.

 

African Queen of Paranoia, without the large gold cascading earrings that I made for her but which catch the light too much to photographed.
African Queen of Paranoia, finally photographed with the large gold cascading earrings that I also made for her. Reminiscent, so i have been told, of the bust of Nefertiti…

 

African Queen of Paranoia (reminiscent of Nefertiti)
African Queen of Paranoia (reminiscent of Nefertiti) You can see that this resemblance was purely accidental, The bust was mostly an exercise in balance!

 

 

 

Papier Mache Bowl, painted with  slimemold motif and papier mache apple
Papier Mache Bowl, painted with “slimemold fruiting bodies and plasmodium” motif, also papier mache apple

 

Bird in Cage - Papier mach by Pamela Spiro  Wagner
“Standish” Bird in Cage for Tim – Papier mache by Pamela Spiro Wagner
Wading BIrd
Wading BIrd-given to Joyce Kamenitz, MD. Paper bird painted with nail polish, made by Pamela Spiro Wagner, placed on cellophane covered mirror with stones and soil mixed with polyurethane and glued to mirror.

 

papie-mache bird in tree banches made for sister by pamela spiro wagner,
Papier mache hummingbird bird in tree branches made for sister, Martha, by pamela spiro wagner,

 

Dr Geuss:  large Papier Mache Goose  made for the Northeast Kingdom of Vermont's Human Services
Dr Geuss: large papier mache goose made for the Northeast Kingdom of Vermont’s Human Services Approximately 3 feet tall

 

Tim with Papier Mache Turtle I made for him
Finaly, my dear friend and art collector, Tim with papier mache Turtle I made for him (so you can get an  idea of the size) Turtle’s head is large but the photo was also taken at angle so it looks larger…Notice copper sneakers, two of them with laces!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

*As for Abiilify and Geodon “causing” my stamina and better endurance? I dunno what to say? I have little social stamina even now. But I stopped the Geodon almost as soon as I restarted it. I just feared taking any drug that prolongs the QT interval, one, and isn[t  even approved in Europe for heaven’s sake! Why is that? I can think of two reasons. One is that it is NOT effective at all, not even enough for them to fake-believe it, or two, it is too dangerous for the Europeans even to subject their mentally ill to it.  There may be other reasons why the European Union declined to approve Ziprasidone, but I cannot think of any other obvious reasons.

 

As for the Abilify, well, I have taken it, more or less, since I was in Care Bed, largely because they got me onto it and I am scared, frankly to stop it…And yet, I do have to “get myself” to take it each and every day, stop myself from simply removing it from the slot in the pill tray that it is in…I should. slowly, but I am afraid, I confess. My therapist at the Northeast Kingdom Human Services told me yesterday that I came extremely close to having been forced into the hospital this month…and she is worried about me if I do not take the fricking drug. But I do not believe it does a danged thing for me, nothing bad either, nothing bad that tis obvious at any rate…But what will it do down the road, and what was that stuff going on with my mouth when I was OFF it??? I want to know but I know no one will tell me or even test me for TD, because they do not want to KNOW…They do not want toi know if the  drug is causing brain damage because of the consequences of their KNOWLEDGE both from me and for them.

FUCK THEM and FUCK ME. I don’t know what to do. Everyone has an opinion and everyone has a different opinion and because I do NOT TRUST MYSELF to know myself or my needs, I listen to everyone at least temporarily. I listen to everyone! But I cannot trust what anyone, any one single person tells me, because I do not actually trust any single person to know a goddam thing about it OR to tell me the fucking truth. That  is the problem. Even Nancy, the APRN, who admitted that the drugs were imperfect and very broad targeting, etc seemed to be too enthusiastic for them, rather than trying to find a way NOT to use them. But that may have been because I myself raised a stink about their having taken a WHOLE bottle of expensive pills (GEODON) from my bags at CARE BED and not returned them to me,…I did not like that one bit.

i mean, I am not going to overdose or sell the meds, but I want what I came in with, and they are MY pills, goddam it! Wh=at right does ANY one have to take them from me! So i partly agreed to the Geodon just to get my bottle of pills back, only then it turned out that they wanted to give me a weekly tray so I would try to be compliant …so I did not get the entire bottle only a week’s worth which I frankly am not even taking.

 

I do not want to take any pills except for what I FEEL in my soul I need! I NEED 1) methylphenidate, or I cannot stay awake to do anything, esp not to drive any farther than 10 minutes  away, if even that. I start yawning about 15 minutes after I wake up…You may think this is a bad drug for someone with a propensity for psychosis but having narcolelpsy is NOT my fault…I cannot stay awake for the life of me. And that was true well before I ever took any other drug. 2) I need topiramate because I really fear seizures, and because if it just reduces my headaches by one a week, it is worth it. I take severall vitamins in larger than usual  but not mega-doses. I take a very small dose of a thyroid medication also, which I would not want to stop…Do I NEED Abilify or Geodon? Some people who have known me for  years and in and out of hospitals say “Yes, absolutely!” some others say, No, not if you reduce the dose very very slowly..”

 

I do not have ANY inkling myself, none at all, but I want to believe NOT…I do not feel that these drugs do a thing at all frankly. Except bad things, especially in the case of Geodon. I do not usually like it when people tell me what to do, but I wish wish wish in this case that SOMEONE with influence would indeed tell me what to do. Precisely..and convince me. But no one is in that position, not any more. I am just alone and fucked…My therapist practically said, no she DID say: f you end up in the hospital it will be no one’s fault but your own, because you won[ take the Abilify….What sort of thing is that to tell me??? Should I just accept that and be quiet or what? Is she right? I didn’t like it one bit. I felt utterly abandoned and scolded and also basically told, well, you heard! It WILL BE YOUR FAULT! YOU TAKE THOSE PILLS OR WE BLAME YOU!!!!

 

Enough of this shit…I should, I suppose, have written something about my gratitude for this lovely holiday, the original one that presaged a wholesale slaughter of our good “Indian” buds we had over for the first T-day…ha ha ha.  And how grateful I am for this wonderful country that treats everyone “equally” and with compassion and kindness (justice? Oh well, we need not mention JUSTICE, need we?Justice goes without saying, don’t it???) Ha ha ha, of course if you are melanin-challenged you might not agree that justice nor social compassion…But some folks in MO, and a certain MO town these past few days and nights have come to a different understanding about such things.

 

Okay enough for the “holy-day” chatter from me for now.

 

Gotta go pace the driveway.

 

 

POEM THAT CAN FORGET BUT NOT FORGIVE

THE POEM THAT CAN FORGET BUT NOT FORGIVE

 

This poem is afraid

because I am afraid.

This poem is always cold,

and shivering, making my teeth clatter

like cheap tin tableware

on a bare plate.

This poem wants to die,

and be rescued too late

to regret it.

 

This poem has been all its life scared,

and still is: scared, trembling

on the brink, trembling,

knowing the truth that lies

beyond the lies

told over and over,

though it has never been taken in.

 

This poem has a voice

small, smoke-rasped, hungry,

and it has much to say

about what really happened

when no one else was there

to stand to protest.

 

This time it wants to be heard.

This poem wants to be heard!

It will spit and curse and claw

out bejesus if it has to,

this poem means to be heard!

 

This poem will tattle-tale

sit back and smile smugly.

This poem will wring satisfaction’s neck

and revenge will taste like chocolate.

This poem is sad as water, poor as sand.

This poem wants to live well,

but it doesn’t know how.

 

© Pamela Spiro Wagner, 2009 (from WE MAD CLIMB SHAKY LADDERS, CavanKerry Press, Fort Lee, NJ)

I may have posted this before but it is especially relevant at the moment because i have been mute for more than 6 weeks now and do not know why it has lasted or what to do about it…

"While I breathe, I hope"– Surviving Schizophrenia

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