Pamela Spiro Wagner:

This is an incredibly uplifting and inspiring post by Kurt Brindley.

Originally posted on

On this day five years ago, I got the news that a recent lung biopsy showed that my lungs were inflicted with a severe form of graft versus host disease (GVHD) called bronchialitis obliteran syndrome (BOS). BOS, I came to find out, was a known but uncommon side-effect resulting from a bone marrow transplant (for leukemia) that I had had earlier in the year. And by severe I was told it meant the BOS was incurable, non-reversible, and, in most cases, aggressively fatal. I was also told — because I had asked and insisted on an answer — that, according to a National Institutes of Health (NIH) study of the time, BOS had only a 13%, five-year survival rate. In other words, there was an 87% chance that within five years I would be dead.

Well, it’s been five years and here I am – a newly…

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Five Point Restraints At Vermont Psychiatric Care Hospital (cont)

After they had me trussed up in restraints…No, let me back up a bit, because it was not that easy…Hannette was the point person, shall we  say, the person who had my head between her hands and was cradling it, “oh so gently” as she “oh so soothingly” commanded me to CALM DOWN RIGHT THIS MINUTE!” Again and again, she subjected me to these absurd demnds as if I could possibly do so upon her order. And as if I ever would do anything but attempt to writhe away from her clammy awful grip on my ears that nearly deafened me to her voice even so.


Finally the job was done and they had fastened a thick plate of velcro across my chest so I could not even sit up or do more than bend my neck a bit to see their handiwork, briefly, before i lost strength and had to lie back down. But I was emotionally overwrought with the situation, and what had happened in the space of only minutes.


WTF? How could this have happened when all I ever wanted was an Ativan to calm down and help me speak? And now what?


But they just trooped out, with Annette leaving last,  saying, “You will tell us in WORDS when you are safe enough to be released, or you will remain in restraints.” She then departed too.


Although two monitors were posted silently in the adjoining room, I could not see them for my position, nor were they permitted to speak to me, as  I knew from prior experience. I let out a scream that echoed through the empty chamber like a banshee howl but it made no difference. Yes, I could hear Chelsea from somewhere, — a sweet  female staff member who remembered my Advance directive and the other times I had been restrained — saying, “Pam, take a deep breath, try to stay calm, I am here, you are not alone…” And I mentally thanked her. But as soon as I could remember that she was there, she was taken away, removed by someone who was told not to talk to me….and so it went. A Dr. Lasix came to me within the half hour and told me he wanted me to come out of the  restraints as soon as possible but I would have to agree to talk with him. What did I have to say to that?

I could not respond with a shake of my head or a simple nod so I remained silent. He shrugged and left.

Several people attempted to engage me in conversation, but as no one phrased their comments as Yes or NO questions, I had to remain still. I was not unwilling to answer, simply unable to. But time and again they told me I was “unresponsive” or non-compliant, though I was calm and had been rewarded with the requisite assessment to possibly come out of restraints every fifteen minutes. But no one let me, because they would not let me answer their questions without speaking aloud.


The hours passed. First one then two then three. Finally the nurse Jennnifer decided to relent and allow as how I might answer the safety questions with a shake or nod of my head.


“Will you remain safe and not hurt anyone?” she asked me, standing above me.

I nodded my head.


“Will you remain safe and not attempt to harm y0urself?”


I nodded again.


Will you get up go back to the unit to and to your room and continue to behave safely if we let you out of restraints?”


Nod nod nod.


Jennifer seemed happy with my responses but also at a loss as to what to do with them. She paused. “Okay, thank you Pam. I have to go back and confer with Hannette and see if she will agree to take you out of restraints now that you have agreed to be safe.”


She left, turning her back, promising to be back within a few minutes.


Instead, it took a good half hour, and when she did, both she and Hannette arrived with a plan. “We have decided that we want to free up one hand and you will write a safety plan with the free hand. Then we will approve it and if it is adequate we will see about taking you out of restraints.”


I frowned. Even as she spoke, Hannette had moved to the end of the gurney where my stocking feet lay exposed. Her belly squished against my toes and soles of my feet, and I felt an immeidiate disgust and worse. I felt instant revulsion, as if I were being deliberately molested by someone who knew I was helpless to resist. So I kicked at her mightily.  If I could have spoken in words I would have yelled something too, like “You effing …something or other…!” but alas, I could say nothing in protest, only scream, and kick. This did have the effect I wanted of getting her to stop and move away. Someone told her to move past me at the head of the bed next time and she did…


But the safety plan writing thing was their way of upping the ante abominably. How dare they? They had already illegally kept me restrained in FIVE points for far longer than necessary, just because they wanted to prove a point and force me to speak. without even offering me Ativan to calm down let alone to promote speech. Now this??? I flat out refused. And so somewhat triumphantly they trooped out, leaving me alone again, still in restraints at 6:00 o’oclock in the morning.


I knew I had to remain as still as possible to earn yet another assessment within the next fifteen minutes. But my muscles and veins hurt becuase I had remainedstill for so many hours, and no one had done any range of motion exercises on me, actively or passively. I was  becoming afraid that I would develop a blood clot if I did not move my limbs on my own, and no matter what they interpreted it as, I began a methodical program of movement. I carefully circled each leg ten times in each direction, the restraints clanking as I did do. Then I bent each knee up and down, up and down. Ditto with my arms, until I was satified that I had exercised them at least a minimum  and could relax into the required absolute stillness for the next fifteen minutes so I could earn an assessment.


Finally, Jennifer returned a final time. But this time it was only to tell me that they were leaving for the night. “First shift will have to take you out of the restraints. It is too let for is now.”


when end I herd this, I let out a bnshee scream of exhaustion and utter frustration, but it was too no avail. Only when first shift finally came on and found me still in restraints at 7:00 am did they relent and give me Ativan and take me out by 7:30.













In 5-Point Restraints For Six Hours At Vermont’s State Hospital VPCH


Fist Protesting Restraints
Fist Protesting Restraints

I admit i had been slamming the doors at 2 o’clock in the morning but this never triggered anything before from the unbelievably patient and forbearing staff at Vermont’s Psychiatric Care Hospital, Unit D, except some bemused bewilderment at what had set me off and offers of PRNs to help calm me. After all, with only two other patients on the floor and those two either stll awake or dead to the world, it really did not matter if I raised a ruckus. But this time, because Hannette was the nurse on duty, my nemesis, it mattered a great deal more than it ought to have.


Instead of letting me slam my door a few times and cool off, as i had so often before. or if not, then opening the safety door so when I slammed it it closed only on air, thwarting my attempts to make noise….instead of any of these non-personal interventions, Hannette decided to take another route no one else had ever done. She came right into my personal space and inner sanctum almost no one ever violated without asking me first. Not only did she enter my bed room, but she came right to the door way of my bathroom where I had pulled my mattress and situated my small bedroom stall inside there underneath the shower head.


I stood on the mattress, by the toilet, higher by a couple of inches, boosted by the mattress. But Hannette pushed up close and yelled at me, “You will not slam any more doors tonight, do you understand?! You WILL CALM YOURSELF right this instant!”


That was like yelling at me, BE spontaneous! Yeah, right. I had gone to the med window at this state hospital I had been committed to weeks before, asking for a second tiny dose of Ativan for severe anxiety and because I had been unable to speak for a few days. The next day the people from my recovery residence were coming and I needed to be able to sleep to meet with them in good form and i had to have a voice to speak with them…

for years catatonia and mutism have intermittently plagued me, and it was only in 2003 that we discovered how effective Ativan was for catatonia…later on, when mutism was the bigger problem, Dr C decided to try it, seeing it as as a feature of catatonia, with good results.


However, here at VPCH the on-call doctor,Lasix,  knew nothing about my relapsing mutism, nor my need for Ativan. He only knew about my complaints of sleeplessness and anxiety. So called around 1:30 AM he refused me a second .5mg dose and ordered me to try to relax on my own and sleep for another hour, before he would consider a second dose.


This is what occasioned, at 2:00 AM my panicked outburst of door slamming. But I did not start the melee that ensued. Properly the trigger was Hanette’s grabbing my wrists. She restrained me in such a fashion for some reason, but now I dunno why exactly. Maybe she saw my mute shaking my fists at her as threatening. Even so, she ought to have just backed away from me, having cornered me in the bathroom, where I felt threatened by her!


As it was, however, she approached closer and grabbed my wrists, another mental health specialist nearby saying at the same time, “we dont want to go hands on here at VPCH.”


“Then don’t grab my wrists!” I screamed silently. But reflexively and in terror, I bent to nip her fingers with my teeth in order to get her to release me.


Well, that of course was where all hell broke loose… and much more to say but the library hours end now so I have to leave this for tomorrow when I can spend more time at the hospital computer.




So, what happened next you can guess.  She yelled for help and help arrived in seconds in the form of staff prepared to go “hands on” not only to stop me from biting her but to actually restrain me completely.


As they  bodily hoisted me off the floor, screaming wordlessly, one man asked, “What now? And HAnnette answered promptly, “Seclude her!”


This horrified me. Not again, not a third time in weeks. not in Vermont where they were trying so they assured me everywhere to reduce these events to zero…This was ridiculous.


But Hannette had had it in for me ever since the episodes early on in my stay — when there had been forced medication, something my Advanced Directive had explicitly advised against for good reason, and which the “good doctor ” had for some reason seen fit to decide to go for anyway…with predictable consequences. So for several days as a result I had been a version of the Exorcist’s  Linda Blair over that first week or two and that is only a small exaggeration. The foul language spewing from my mouth in hourlong torrents was utterly uncharacteristic of me, both in kind and sheer amount.


But it was now nearly week three and after I had filed a grievance, the forced meds had been stopped and so too my involuntary Linda Blair imitations. Only Hannette it seemed still held those horrors against me. Everyone else had been both forbearing during those horrendous days and extremely forgiving afterwards. What is more, during my outbursts, even when I tossed chairs and overturned tables, no one had over reacted or punished me for the extreme and extremely disruptive behaviors i had exhibited at the time, no one.

Only once, when I became apparently dangerous, did the charge nurse put me briefly in five point restraints. and that was when I literally splashed urine all over him and other nurses and urinated on the rug in public and then hit him and two other people…But at no other time did they even come close to suggesting involuntary procedure such as meds or seclusion or restraints. Or at least not that I knew of.


Now here i was being dumped in seclusion largely because Hannette had grabbed my wrists, standing too close to me in my own bathroom!


Worse was to come. After the panoply of staff dashed from the room,  I ran after them in anger but they closed the door and locked it, locking me in alone.

Hopeless, I sat back down on the mattress dazed and sad but not moving. I heard them talking  but scarcely listened, trying to calm myself and wondering how long they planned to keep me in this god forsaken room. Then I heard someone say, “She has her glasses and watch. We have to get them!”


Soon they piled in again, all of them on top of me at once, peeling off my two pairs of glasses and watch and my medical band. And then they searched me for pockets of which I had none. All this time I was screaming, wihout verbalizing a word…and fighting them in protest at the intense violation of my person. Then as they tried to dash off I followed closely and almost escaped the room with them. This time they did not succeed in closing or locking the door, no, because I was wedged in-between. So someone said. “Back inside!” and we all moved as one back towards the mattress.


I thought they were going to use the maneuver Scott , that charge nurse. had used the other time, to twist my arms and legs in such a way as to make it difficutl for me to untangle myself and give them time to get out before I could follow. Not pleasant for me but not painful either and rather clever nonetheless.


But no, instead, to my dismay I heard Hannette call, “Get the Bed.”  The  BED??? For what? What had I done to deserve The Bed????


But the bed was gotten and within minutes I was trussed up in FIVE POINT RESTRAINTS for nothing more dangerous that holding up my fists at Annette and nipping at her fingers when she herself had grabbed my wrists!!!!


The worst is yet to be related alas. much worse. But I do not have enough time tonight in the library to explain it all and I need to post it tonight or it will be lost. I go home to MRR on Monday , which may be news to many who have been wondering where I am or have been.


It has been a long long journey and it is not over yet. More tomorrow on this story and perhaps I can also catch you up on other parts of it as well. In the meantime  know that VPCH is by and large a good place all told, just not a place to call home, not if you have any life of your own left to live.


Tata for now.














My Statement to the Police About July Assault in ER

Dear Reader,

This is only part of what i have not been able to write about for months. And there is a great deal more. Now that “Mike” is formally being charged with Assault, i feel i can share this much. In the future i will say more. But for now, at least i will share this statement that i wrote for the police, some weeks later, which is only a second statement, as they already had the statement I originally wrote the very day the assault happened.

Alas, I do not have a copy of that statement, which another ER nurse had to transcribe for me as I was not permitted the use of an ink pen at the time. It was also after I had been illegally but forcibly administered IM Haldol, despite the fact that the record itself shows that I was lying on my bed in my room with my headphones on and the lights off. The record also shows that  an order for PRN 4-point restraints was entered into my chart at that same time. And this PRN order was kept there for the entire 8 days that I was held captive in that Emergency Room, a matter that the lawyer’s grievance deals with but for which a mere grievance seems hardly adequate.

Let me start at the sort of beginning, which is to say only that I had been hospitalized by force at R— at the State Hospital Unit there — and I will talk about that experience in a whole different post. But after 6 weeks I was discharged to a step down facility largely because I had so alienated the hospital doctor that he wanted to get rid of me…Let’s face it. I told him each time I saw him, “Get lost, I do not want to talk with you, You are useless!” Needless to say, this did not go over well, useless though he may have been. And though I found the Social Worker very helpful and so too many of the nurses and mental Health workers and the Occupational Therapist was wonderful as well, but ONLY THE DOCTOR mattered. At least in his own mind, and so he arranged to discharge me somewhere I would no longer get under  his skin or on his nerve i.e. anywhere but in his hospital!

That this step down facility had no medication supervision, beyond opening a safe and having a resident take whatever she or he wanted, this mattered little to the doctor, apparently. Despite his insistence that I needed the medications to such an extent that I have been on a so-called ONH or “order of non-hospitalization” for months now, meaning that wherever I am, I can be hospitalized if I do NOT take the meds, as contradictory and gobbledigoookish  as that sounds! SO I was sent off to  R–, Vermont, to await a bed first at Alternatives and then a more or less long term placement at MRR in Brattleboro, where I am today. (Though how I got here was not via that route as it turned out.)

But in R, Vermont, I did not last longer than a week at the step-down facility as I failed to take the meds and I suppose this is why I ended up trying to set my hair on fire, after receiving commands from “on high.” That is also why I was at the ER when what I describe below occurred.

I knew when the staff member left me alone in the ER, after she walked away and left me there, that I was sunk, that I was going to end up back in the hospital, and with that realization, my heart plummeted. I did not want this, I did not want it. I  decided then and there to do all i could to be compliant  with the doctor and the crisis team, even more so than I already had been, which was plenty. I asked if I could take 10mg of Zyprexa. I even suggested it before the Crisis Team could get there. But it did me no good. They took one look at the report from the step-down facility staff member, who told them about how I had waved lit cigarettes near my just-washed hair and singed it, and they decided — in the lingo of Emergency Crisis teams, that I was “a danger to myself” and could not leave and had to be hospitalized against my will. This would not do. I said as much. I said,”I do not want to go to any hospital. I do not do well in hospitals. I want to go back where i was. Please do not make me go to a hospital. I want to leave”. And with that. I got off my gurney, as I recall, and I am sure the hospital chart can correct my memory if faulty for details now, and proceeded to walk slowly towards the door. I walked slowly because I did not want to trigger an assault by the goon squad. And I did not want to scare anyone into thinking I was doing anything besides deliberately and consciously choosing to leave. But as I did so, a man, a nurse, followed me. I walked slowly out the main door, still dressed in hospital pajamas, since where was I going to obtain any clothing? And I took about 10 steps when he yelled at me, “You go any farther and  I am calling the police!”

Now I will let my statement take over the account.

“I want to scream to someone that i saw in the eyes of the nurse who attacked me someone who recognized Satan and that was why he started screaming at me so uncontrollably before i did anything as “Pam” to “deserve it.” Do you understand this? This should have been obvious to anyone watching the video, but i do not yet know where we go off camera…i only know these facts: that he told my body that if it took another step away from the hospital (i had already walked slowly out the main hospital doors) he would call the police. I believe i shrugged and said, “Go ahead and call them.” Then i decided, remembering the Springfield VT police brutal tactics not to trust them in R—– and so i turned around maybe fifteen feet from the double doors deciding to return and proceeded, again slowly, back towards the entryway. It was then that this nurse started to scream at me. i was shocked at this, because i had already reconsidered and was returning under my own steam. i objected to his screaming and i asked him, likely also loudly, why he was screaming at me when i was already complying. He continued screaming even louder and then he grabbed me and bear-hugged me in a suffocating restraint hold that set me off big-time. He is a big man, and i could not get away from him. He dragged me into the hospital lobby, where, desperate for release, i kicked backwards at his shins.

This must be what so enraged him that his reaction was to throw me forcefully to the ground and jump on top of me, mashing my face into the carpet in such a frenzy that i feared he was going to kill me. I could not breathe or even scream for several long seconds as he continued to grind my face into the carpet. I was terrified for my life and did not know when or whether he would stop. Finally –i never knew what made him stop – maybe someone came out of the nearby ER and saw him attacking me? Whatever was the case, he hauled me back to my feet. At this point i was breathless and extremely frightened, but i nevertheless screamed at him in fury, “You rapist!” I may even have screamed, “You fucking rapist!” I really don’t know. I only know “rapist” was the worst thing i could think of to call him as he had violated every ethic of nursing and emergency care-giving possible and as far as i was concerned he had raped me just as completely as any man who violated my sexual parts.

Unfortunately for me, this only served to further inflame a man already too out of control for explanation, except as someone who felt face to face with Satan: his reaction was to haul off and slap Pam’s face, to shut her up, grabbing my mouth so i couldn’t scream that word any longer.

Maybe someone came out and helped her at this point but I do not recall, even though it might have happened. The next thing i remember is screaming from inside my room in the Emergency Department for a long while and when the police officer appeared, begging him to listen to what the nurse had done. He clearly did not believe me. All he did was leave a statement form for me to fill out –i repeatedly informed him that the Emergency Department staff did not permit me access to pens — and he told me i would have to somehow transmit my statement, signed and notarized, to the police station on my own.

In the meantime, i overheard the same nurse, who i believe was called Mike, telling falsehoods about how i had run into traffic while heading towards the train station. I objected loudly and vociferously. All i got for this was to be restrained yet again, this time by the same police officer among others, and despite my repeatedly asking what medical emergency justified it, to be forcibly injected with Haldol, a medication that my Advance Directive — which the ED had noted and logged in that very night– explicitly directs is never to be administered. This same drug was given to me against my will and over my strenuous objections, even though i lay on the bed the whole time. I was not overtly agitated by this time. At no time was i was more than tearful and most certainly never out of control.

I later complained of ribs (left ) pain — from how hard Mike had compressed me either in his restraint hold or when jumping on top of me, and knee abrasions (right) the latter from being dragged on the carpet. i told the ED personnel several times that night and over the next few days i spent in the Emergency Department. They never looked at my ribs or my knee to appraise these injuries, not until a few days later when Dr Sandy C——     ordered x-rays.
Because no one would document these injuries i was forced to photograph them myself in the mirror.

Ribcage bruise a week later

“Schizophrenia or Suggestibility ” by David

Sorry. Sorry! mea culpa!!! i meant to introduce this post with this: “David” wrote me with the following essay about his experience,which I promised to post for him on my blog. It follows: 

” I saw Lady Quixote’s story printed out at the Hearing Voices meeting in San Francisco.


“What struck me was how similar was the story she told to my story. When I was a small child I did self hypnosis as a hobby.  Later as a young teen I met a senior citizen from the Unity Church who provided me a lot of books about new-age psychic topics. She talked with me about automatic writing and spirits. I did many of these things in hopes of becoming psychic.


“Through my high-school years I continued to be interested in these things but only when the college experience overwhelmed me did I become preoccupied with the voices in my head.  I would look for guidance in things as simple as where to walk.  Since walking to class was a prerequisite to attending class, if I was guided instead to walk in the woods, I failed at college.


“In addition, throughout my psychic explorations there were instances where there were definite connections between my mind and the rest of the world.  Although the number of true experiences were far less frequent than the imagined ones, they reinforced my beliefs.


“After I returned to my parents’ home I had the typical delusional experience of believing that there was a direct connection between the universe and what I was thinking and hearing in my head.  Unfortunately what I was hearing was based on what I thought abut myself and as I spiraled downward, I was told that I had to kill myself.

“After getting out of the hospital and the halfway house with a diagnosis of schizophrenia, I returned to my parents’ home.  A few years went by with little change but I began to doubt the veracity of my voices and found that I could dismiss or ignore them.   They eventually faded away into the benign parade of inner thoughts.

“The thing that struck me after thinking about Lady Quixote and me is that there are some states of mind called schizophrenia that would better be described as suggestibility.  In the old days folks like us were seen as having been possessed by demons, and perhaps the exorcisms actually worked when the people believed strongly enough in prayer and calling on Jesus to drive the demons out.

“I think that it is a shame that this type of diagnosis has not been made by treaters because it would be helpful to folks to understand that they can be liberated from their troubles in a much more straightforward way, as  Lady Quixote was.

“Because, like her, I had some actual experiences that could be classified as psychic, having a diagnosis that labeled my inner thoughts as strictly delusional confounded matters.  The psychiatric community does not acknowledge that some of us have to deal with both real experiences and our overactive imaginations. They are trained in the practice of science, which is opposed to the various phenomena we call metaphysics.


“I am happy that my inexplicable experiences usually involve rather mild, not very intrusive thoughts, as opposed to noisy voices.  I try to practice good mental hygiene to keep the inner critic mostly at bay and avoid overstressing myself.  It has been about 40 years since I was troubled with my inner voices.



I Will Be a Gadfly or Die!

How very similiar Michael and Charlie look...and and no wonder, since they share the same sadism genes!
How very similiar Michael and Charlie look…and and no wonder, since they share the same sadism genes!

In the next few days I will be writing and having a guest post from someone but today I want to write about a frustration that has got my goat bigtime. It has to do with the letter that I wrote to Kathryn Power, “bigwig” at SAMHSA or, for those of you who wonder what the letters stand for, the Substance Abuse Mental Health Services Administration, for Region One, which covers the New England region.


Apparently she took my letter very seriously, which I did not know. This may have been because I never received her reply, if she sent one, having given her the wrong return address ( I did not know the proper one where I was to be living at MRR in Brattleboro.) Or it may be because she failed to copy me on any of the emails she sent to any of the parties she subsequently wrote to, both in the Federal government and at the state level. Whatever the case may be, apparently she wrote to several officials, including the Connecticut Department of Mental Health and Addiction Services and possibly the Department of Protection and Advocacy ( which dumped me completely after assuring Susan Stefan, Atty at law known for her work against seclusion and restraints, that they were working closely with me). I never knew this, nor have I learned the outcome of these contacts. I only just today received faxed records of these initial emails.


So I know that Ms Power contacted Mirian Dephin-Rittmon who is the new commissioner of mental health in Connecticut. I would like to think that Ms Dephin-Rittmon responded somehow, but I have no such evidence, and if the response from Patricia Rehmer, her predecessor, is any hint of what I could expect, then the answer will b: NOTHING, nada, zilch, a big fat zero. And why is that? Because in Connecticut the Commissioner of Mental Health and Addiction Services, while she may nominally be serving all citizens with mental health problems, actually has no such mandate. Not at all. She serves in fact ONLY those who are hospitalized in STATE facilities, which are extremely limited, and how lucky for her, and in fact for them, because they get protections that none of the rest of us ever got.


It was not that we were not indigent and also on Medicare and Medicaid, and also on SSDI and possibly on SSI. Most of the patients at general hospital psychiatric units in Connecticut, if they are repeat offenders of any sort, are usually on assistance of this kind. How could they not be? Most have been “disabilified” – that is, disabled and made into disabled-thinking persons — by medications if not by illness and by the systematic undermining of their personhood by the State. (I know, that is an argument that needs to be enlarged, but elsewhere, elsewhere…) But they are not in State facilities, decidedly not. Why is that? Because courtesy of the State Government, most state facilities, especially for adults, have been closed down or turned into prisons.


So if you need a hospital, you must go to a general hospital psychiatric unit where the Commissioner of Mental Health and the Department of Mental Health actually have no jurisdiction or sway. Literally the only way you can get into the safety zone of a State Hospital, that is to say, into the ONLY state hospital that now exists in Connecticut, Connecticut Valley Hospital, is by being thought such a bother to the nursing staff at a general hospital that they want to get rid of you, and they send you off to CVH for “longer term treatment.”


But this, mind you, is a punishment, it is not something that they do out of caring or attempts to render better treatment. Not at all, and I should know. After all, I have been threatened with such “treatment” several times, and the last time was when I was at New Britain Hospital in 2014. There, because I was labeled “a borderline” and therefore dismissed as manipulative and dramatic. Every word I said was disregarded…Nothing I could say was taken seriously. And every act was regarded as willful and deliberate. So they could justify punishment and torture as my just desserts, and they tortured me by dragging me to the seclusion cell for swearing under my breath, and four-pointed me for hitting my head lightly against a wall, after they stripped me naked in the cell and I begged for a blanket they pointblank refused me ….


You see the picture? I was “so impossible to deal with” that they were going to “send me away” as punishment and in revenge.


We all knew this, we all knew that CVH was the last stop, their last resort and final punishment for those of us so obstreperous as to object to their outrageous brutalities and keep objecting rather than bow our heads and submit. In the end, because I was so determined to get out, to escape to Vermont, I did, I gave in and gave up and submitted, and it worked. I played their game and got out of their abysmal unit. I submitted, for which I cannot forgive myself…


My point here though is that it is only when a patient has been deemed such a pain in the ass that she is sent away, sent down the river to CVH that Pat Rehmer or Miriam Delphin-Rittmon ever comes into the matter. Before then, they are not interested or concerned with what happens or happened for that matter. They do not give a damn. Not that they don’t care about torturous seclusion cells or four-point restraints in general, it just ain’t their juris-my-dicktion to care about what happens to patients in city hospitals. Sorry, but it ain’t. So they don’t pay attention. They just can’t and so they don’t. It is, as my friend Josephine says, always as if newly minting the expression, what it is!


That said, there is Capitol Region and the Connecticut Mental Health Center too, but they serve exclusively the uninsured, so that of course was not for me, who have been covered by Medicare and Medicaid for years. So lucky me, I could luckily go to New Britain General Hospital and be tortured by the likes of Michael E Balkunas, with utter impunity because DMHAS has no oversight or jurisdiction over these psychiatric units, NONE WHATSOEVER.


Did Kathryn Power not understand this when she wrote to Miss Miriam? Apparently not. She might have believed that the Commissioner of Mental Health in Connecticut could or would do something to help a mentally ill elderly citizen who had been tortured in a psychiatric unit in Connecticut. Foolish Kathryn! And then maybe she thought that Protection and Advocacy could be called upon to help me as well? Oh, what a sad, sad day for Ms Power when she learned, or did she, that P and A in Connecticut has no interest in helping anyone? Did she really think I had not applied myself to anyone for help before I went to her? Where does she think I have been for the last year? Doing nothing? I have tried and tried and tried and tried. But no one answers and no one does a thing!


Oh, I could laugh if I were not so broken and so sick at heart. But I will not let the fuckers win because then the torture will just continue unabated. No, I will continue to nip and snap and irritate Mikey B. and the nurses at W-1 at HOCC in New Britain until they themselves cry “uncle” and change their ways. I will not stop until they are stopped in their brutality and stop hurting people. I will never cease this campaign until I know that patients at W-1 are safe from harm or W-1 is closed down and I am certain that Dr. Balkunas has lost his license for good.


But the worst thing was that Ms Power finally sent the letter to the Office of Civil Rights (OCR) in Boston which was directed to open a Complaint! Yes! But just whne I had hope for this, bizarrely enough, they closed it on the basis, get this, that my complaint “alleges abuse at MANCHESTER MEMORIAL HOSPITAL IN APRIL OF 2008″ — Say what?????? Huh? !!!!! My letter does no such thing. It never mentions Manchester Hospital at all.  Why would it? I had never even been there in 2008 or before 2009. And the first time I was EVER at MMH was in October of 2009, so WTF??? THis is so bizarre and so outrageous and so disgraceful a reason to deny my complaint a basis to go forward that I have had it…To say in the first paragraph that I allege torture at New Britain Hospital in 2014 and then in the fourth or fifth paragraph to somehow segue in this extreme non-sequitor to alleging something in Manchester Hospital in 2008, when I was NEVER THERE…just gets me down completely, because  you know, no one in the chain of information who saw this and they did, NO ONE CALLED THE OCR  on this or told them to get their act together and fix their mistake,.no they essentially let it go and made me suck it up…

FUCK THE THE ASSHOLES I cannot take this shit any longer.  FUCK THE WORLD I WANT TO GET OFF! I have had it. I’ve had it, No one gives a damn about anything…I give up.

What I eat

Pamela Spiro Wagner:

This is one of the best posts i have ever read, on eating “right” on why we should listen to our bodies, and why the “care” system doesn’t give a shit…by a woman who has more courage than sixteen put together. Read it, please.

Originally posted on This Hunger Is Secret:

I was asked by several readers what I actually eat. I share this with the reminder to all readers that all bodies are different and what works well for me might not work for you. We are all wonderfully different from each other. We have varied likes and dislikes. We have different cultural backgrounds and foods we grew up with. Our food history will influence our current eating habits. Our nutritional needs are not uniform but as varied as we ourselves are.  So keeping that in mind, here’s what I like to eat and how I manage food.

In order to get better from my eating problems I first had to change my environment. For many, this won’t involve a drastic relocation as I did, but that’s what worked for me. Then, I realized I was free to experiment and find out what was truly helpful. I didn’t want to…

View original 2,243 more words

Radio Show about Schizophrenia

Leonard Lopate Show on Divided Minds (2005)

Hi everyone, i hope you will enjoy hearing this show, despite the fact that it was recorded several years ago. I plan to update you all on my progress since then and about M–V— in Brattleboro, where i live now. But it may take some time to get that organized and myself in gear. So in the meantime,  i found this older radio broadcast that most of you likely have never heard, being out of the NYC area at that time.

For myself, it has been nice to hear my twin sister’s voice and her sounding so very kind and sweet to me. I have not felt that from her or about her in such a long time…and i dunno whether it is me and just a perception, or a real thing. But i wish i had her back in my life in some way that could work for both of us without either jealousy or anything that threatened either of us. (I mean jealousy on her part, not on mine…)

Anyhow, i hope to write a longer and more uptodate post soon, but thank you all for sticking out my long absence and waiting for my return.



Ps this table below was made from cardboard and fabric and paper and glue….largely because we have only beds in our rooms and i needed somewhere to store some of my things. So the table hides a small storage compartment under its removable top.

Cloth mache table made by pamela spiro wagner
Cloth mache table made by pamela spiro wagner

Hospital Art #2 – Rebus : pictures instead of words

This was done with bendable safety ball point pen, all that the first hospital unit would permit me to use.... You read it from the left bottom upwards following the arrows. Hint: the upper left is a knot, not just wood.
This was done with bendable safety ball point pen, all that the first hospital unit would permit me to use…. You read it from the left bottom upwards following the arrows. Hint: the upper left is a knot, not just wood.

Hospital Art 2015 #1

Collage of the voices- the Five People C. 3' by 2'  made with magazines on watercolor paper backing and largely glued with homemade glue of crushed saltines and water ( before i knew that vermonts central hospital would provide me with all the gluestix i needed!)
Collage of the voices- the Five People C. 3′ by 2′ made with torn magazines scraps on watercolor paper backing and largely glued with homemade glue of crushed saltines and water  (this was before i knew that Central vermont hospital would provide me with all the gluestix i needed!)

Open Letter to Kathryn Power of SAMHSA

Dear Kathryn Power,

In May 2014, mute and psychotic, I was taken to Hospital of Central Connecticut in New Britain’s Emergency Department by ambulance. My visiting nurse, in concurrence with my outside psychiatrist, had called 911, concerned about my safety and my ability to function because I had not spoken for weeks and was not taking adequate care of myself. I was not agitated, instead, I was unable to speak and slowed down rather than anything else.

More than a year has passed since then, so instead of relying on memory, I will paste here what I wrote shortly after my subsequent hospital stay, with edits for clarity and concision. Some has been taken from the secret journal I kept in that hospital, a journal which I was forced to scribble on pieces of torn-up brown paper waste basket liners, surreptitiously mailing them to a friend immediately the moment I finished writing. I  had to do it this way because a housekeeping staff member had told me that nurses instructed her to throw out everything in my room, including first class mail, each time they found a reason to seclude me, which was frequently (nearly every day in fact, and sometimes more than once a day.)

More on this follows.

But first let me tell you what happened in the Emergency Department. I came in by ambulance. I did not want to but was given “either the easy way or the hard way” choice by the police who came with the 911 call. I did not resist or fight, nor was I restrained in any way in the ambulance. As I said, I was mute, which had deeply concerned my Visiting Nurse, and mostly passive. I merely handed the EMTs my medication sheet and my detailed but clear Psychiatric Advanced Directive. This is critical as on page one and two are clearly typed vitally important information about my trauma history and how to deal with me in a crisis, including provisions for when I might be mute.


The first page of the ED chart states that availability of my Advance Directive is “unknown.” Nevertheless, the ED triage note states, with apparent disapproval and resentment, that “pt presents with detailed instructions on how to provide her care..” i.e. the psychiatric advance directive. This seems to have been immediately disregarded, as insulting to their knowledge…


ED Nurses note: “Seneilya… RN Assumed care of patient. Patient arrived via EMS after VNA called for increased anxiety. EMS reports patient refused to speak but wrote down, “Sunglasses block hate. I don’t want to hurt anybody.” [*sun-glasses are “hater-blockers” yes, but they block other people’s hatred. The RN never got my point and I was mute with no way to communicate the distinction…] “On admissions patient refused to speak to this RN. Patient pointed at her head when asked why she was here. Patient nodded “yes” when asked if she was hearing voices but refused to answer other questions. …(next sentence indecipherable)


Report given to Beth RN who assumed care of patient…”


At 15:19 Beth RN wrote the following:


“Pt not responding verbally to this nurse, this nurse looked through her art book and placed it back on her stretcher then pt picked it up and slammed it down on the stretcher and pointed her finger at the book. Unable to get pt to communicate. Pt pulled sheets over her head. Pt still in street clothes, will pt [sic] as is until examined by MD.”


What is not said here is that this nurse, “Beth” never asked me whether she might look at my art book. She just took it. She refused to allow me any other means of communication, except  speech. When I was unable to do this, she did not inquire as to why I did not speak nor apparently did she attempt to make inquiries from anyone else why this was so. If she had provided me with means to write I might have been able to tell her what had happened in the previous two weeks at home. Instead, she appeared to become angry and from then on refused to permit me any mode of communication other than the one she preferred.


I was later given a hospital gown and told to dress myself or I would be forcibly assisted in doing so.


Beth RN records what happened after a meal was given to me that I did not eat (it was not vegetarian).



“Pt ate nothing,” Beth RN reports, “[but she] wrote messages with ketchup and French fries, [saying] ‘I need a crayon.” [***] This nurse told pt she needs to speak because she can, pt threw everything on her table on the floor, food juice, etc. Pt then picked up fries from the floor and started eating them and gathered more and putting them in the bed with her and kicked the other food away in the OBS area.”


“Pt went to the BR, seen coming from the BR with paper towels then pt observed writing with her finger on a paper towel with something, first thinking it must be ketchup, then maybe jelly, then this nurse got up to check and pt found to be writing with her own feces, some paper was able to be removed, other paper with large piece of BM pt threw at this nurse. Pt moved to room 42 [seclusion] then pt got OOB and snuck around corner and tried to attack this nurse [?***] from behind, [public safety was able to get to pt first,***] pt to be medicated and restrained. Pt licking feces off fingers, would not let nurse wash her hands…”


In point of fact, fact I never attacked or even  tried to attack the nurse as you will see.


And the nurse knows this, because she backtracks in the chart and says so, here” the Public Security was “able to get to pt first” so she knows full well that I never  ‘”tried to attack her” and they knew they had no right to restrain me. The chart alone makes it clear that I never did a thing. She would not have phrased it that way if I had attacked her, or even attempted to. No, if I had attacked her, she would said so. In those terms. Not in uncertain, vague terms. She never would  have said what amounts to, “Oops, patient attacked me, but the guards got to her first before she, um, tried to attack me, so really she just wanted to attack me, I think, but never really did, so…um, she never did even really try to attack me, I just assume she wanted to, but like, you know, I can’t really be sure, like, that she wanted to attack me she just looked really, really mean and she wasn’t saying a word, so I betcha she did, and I am really, really glad those guards stopped her from trying to attack me just in case she, like, might have wanted to try to attack me, you know?”


Now I want to tell my side of this story because they invented this story out of whole cloth. Yes, parts of it are true, but the chart puts them out of order and not the way Beth related it. This is important because the way she wrote it makes me seem like I spontaneously leapt off the gurney and attacked her out of the blue, which never happened. However, I was also privy to a conversation by the so called Public Safety officers, AKA Guards, who in front of me, in fact while they were holding me down (I was mute, mind you, so remember that they thought I was also deaf, or forgot I was not) decided to create this story in order to justify 4-pointing me, because they simply wanted an excuse to do so.


What really happened was that due to my need to communicate, I wrote my needs with ketchup on the paper box the meal came in. Then that too was taken away from me, and Beth came up to me, and instead of speaking to me, handed me a NOTE she had written (the irony of this is beyond belief!) saying, “I will not speak to you or give you anything to write with until you start speaking to me.” At this point, I was livid and also so desperate to write I had no choice but to use whatever I had at hand.


So, yes, I did do as she wrote in the chart: I went to the bathroom and had a bowel movement and took some feces back to my cubicle and I tried to write journal entries about what was happening to me on paper towels with my own fecal material. And no, this did not go over very well with Beth or anyone else. But I never attacked Beth or even tried to assault her. Instead, she snuck up on me and snatched my art book out from under me and raced away with it, holding it up in triumph as she did.


I was so furious that without even a thought as to possible consequences, I raced behind her intending only to grab my book back. That was all. I never assaulted her, I never so much as touched her. I wanted only to only grab the book back that she had not asked to take from me. Period. As she suggests when she says, “public safety was able to get to patient first.” Well, in fact I had never any intentions of “attacking Beth or anyone else and the guards knew it. But the fact is, I never touched or attacked anyone, they grabbed me and attacked me!


That was the point when they dragged me to “Room 42″. The two guards, holding me down, decided they wanted an excuse to four-point me, and though one of them cautioned that they really had no reason to do so, the other one told him not to worry, “we’ll find a reason.” And as I learned shortly thereafter from accusations of my having assaulted a nurse made by Dr. Michael E. Balkunas, they did so.


But just because an accusation is made doesn’t make it factual or true, as we all know, and just because Michael E Balkunas accused me of lying about it, and again when I later informed him about them stripping me and leaving me naked in the hospital seclusion room doesn’t mean he was correct either. He never asked me what did happen. He never tried to find out the real events of that evening, he simply designated me as manipulative and “volitional”  — a “borderline” — essentially a prime-time liar. He had already conceived an intense antipathy towards me, so by the time he finally came by to see me on the W-1 Psych Unit the next day, he had made the decision not to let me communicate by writing. Therefore, his intent right from the start was not to let me tell him what was going on. He decided, from the very first moments, not only not to recognize the desperation and extreme frustration this induced, but to see only violence and willfulness in me. His solution? Punishment and torture. Period.
But I am getting ahead of myself. Michael E.  Balkunas, MD, the director of New Britain Hospital’s W-1, claimed to have been there when the ED incident I describe happened, when the guards said that I just shot up off the gurney and spontaneously attacked Beth, the RN, from behind. But the record does not bear this out. In fact, he never saw me at all on the evening of May 12: all the orders were written by other physicians. Dr Balkunas’s name is not even mentioned until the afternoon of May 13 when it states only that he was at my bedside to evaluate me. Even then, from what I recall, I was so sedated after multiple forced medications, use of four-point restraints and seclusions, that I was unable to answer a single question. Since I could not speak, given the fact that Balkunas too refused me any writing implement the interview was as unproductive as could be imagined possible.


I was to be admitted to W-1 on the basis of his judgments from that single brief evaluation, from which he drew the diagnosis that in addition to schizophrenia, I had a probable “borderline personality disorder.”  (He spoke to no one in my family nor my longtime nurse or doctor nor my friends…and he did not even hear from me, yet he drew this snap conclusion on what basis???? And yet it hideously affected my treatment at the hospital)


How could he possibly diagnose a personality disorder, seeing me in such traumatic circumstances and for a few minutes only? In point of fact, what likely happened was that he took a disliking to me, and diagnosed me with something that in his mind justified his later egregious treatment of me, and in particular   justified his disallowing me to write instead of speak. I cannot otherwise explain his behavior. Nor can I understand his astonishment at my response when I did not react well to these punitive ministrations. Why did he think I would respond positively? Why did he think that coercion would be beneficial? Did he truly think his “treatment” would be restorative? What I think happened is that he decided he did not like me, right from the moment he laid eyes on me — I may even have been naked in restraints, who knows?– and so he opted, as many men do, for  savage abuse and punishment.


But there are policies at W-1 that hurt everyone, not just me.

“I want to explain what “deserving” seclusion or restraints and being “violent” at New Britain General Hospital (Hospital of Central Connecticut on Grand Street in New Britain) means in 2014. I also want to tell you something else even more important: In Connecticut, the staff at almost every psychiatric unit or hospital will insist that “we only use seclusion or four-point restraints when absolutely essential, when a patient is out of control and extremely violent, and cannot be controlled in any other way.” Trust me, I know. They have said this sort of thing to me in each and every single Connecticut Hospital I have ever stayed in, except for the “old” Hartford Hospital’s CB-2 psychiatric unit in the 1980s-early 1990s, when Sharon Hinton APRN was the head nurse. I do not recall ever hearing about any seclusion and four-point restraint policy. I know for a fact they had NO seclusion cell, and while I spent many admissions starting out in their “secure unit” what we got there was simply more attention, and more care, not more abusive control.

But what you need to know is that they are NOT talking about some 400-pound man hopped up on PCP, waving a machete. For one thing, that person, I believe is largely mythical, or if real now largely confined to correctional and law enforcement settings. The person they are talking about, the rule, not the exception to the rule of the “extremely violent” person whom they claim must be restrained due to lack of any other method of control, is, to put it grammatically correctly, I. I am the rule…The person they secluded or restrained almost without exception at hospitals like New Britain and Manchester and Middlesex and the Institute of Living was none other than me.

So let me tell you about me. I will turn 63 years of age in November. I am 5 feet, 3 inches tall, and until I moved to Vermont, I weighed, maybe 108 pounds on a good day, Furthermore, I have been consistently described as “poorly muscled.” Not only has my right shoulder been recently injured by staff encounters at New Britain’s hospital, but I before I was hospitalized at HOCC I was unable to use my left arm for much of anything, due to injuries sustained at the Institute of Living in 2013, including a small tear in my rotator cuff and possibly more than that– a fact the NBGH/HOCC nurses/security guards knew (they stated it out loud) and used to their advantage when subduing me.

I also want you to know that I am a decades-long vegetarian on the principle of non-violence — and have always believed in non-violence to people as well as to animals. I have opposed the death penalty since I was a nine-year old child (when I first learned of it) and do not even believe in the principle of prisons, or in treating our convicted criminals as we do. Yet in many Connecticut  hospitals since 2000, and of course for years before then (“before they knew better”) I have been brutally secluded and restrained multiple times as “OOC” — out of control — and “violent.” In addition to either holding me down by brute force, 2 people to each limb and one to my torso (this was at the only 2 hospitals  that did not actually resort to mechanical four-point restraints– compared to the half dozen others that did), they routinely injected me with two to three drugs as chemical restraints (really punishment drugs, as I frequently called them, without anyone correcting my perception) whether they were required or not.

I am the rule, not the exception, I am this supposedly “extremely violent mental patient” who is so O.O.C that Connecticut hospitals refuse to eliminate the use of restraints and seclusion, because they “might need them.” I am the typical person they claim they absolutely must have the right to resort to the use of violence, for their own safety and mine.

Okay, so am I truly violent? What did I do to deserve their brutality? Or should we say, their “protective measures?” Well, at HOCC, on W-1 this is what happened.


Michael E Balkunas MD, head of W-1, wrote that “while in patient would often scream.” Yet he states with apparent resentment that I had brought items with me “such as a large advanced directive.” The nursing notes repeat this as if this is a bad thing, and then they proceed to disregard every item on it. Not only that but after Balkunas accuses me of behaving with “volition” (whatever this is meant to prove) he never actually adduce any further facts or observations to back up what he means, except that I brought with me the large psychiatric advance directive and a published book of art work I had done.


This book of my art, by the way, was deliberately kept from me the entire time I was on the unit, because, I was told it would be extremely harmful for the other patients to see it. The nurses repeatedly reinforced this message: any glimpse of my art would hurt them. This was emphasized to me: I should feel guilty not only for having brought the book with me, but for having drawn the pictures at all. The RNs seemed to enjoy my feeling bad about this….


Balkunas further claims in the chart that he repeatedly “asked if patient would like to speak to him, please,” but what he fails to note is that he refused to permit me any possible mode of communication. He also peremptorily walked out on me when I could not utter a word. He notes that, yes, I threw my bed-clothes at him, but fails to mention that he would not acknowledge my gestures or try to figure out what I wanted to say. Instead, he stood up in disgust and turned on his heels and left.


I admit that having already been secluded, 4-point-restrained and forcibly sedated in the ED, and then called a liar by the doctor who was supposed to care for me, I was very upset at being unable to make him stay, to make him listen or attend to me. So I did the only thing I could do to make noise of any sort. I got up off the bed, which was the only furniture in the room, and slammed the door after him. I meant only to make a noise to express my frustration, but unfortunately it caught him in the shoulder.


This was not intentional. I scarcely recall doing it, though I confess I was so enraged by his dismissal of me, especially after the violence inflicted on me not once but twice the night before in the ED, that it is possible I wanted the door to make contact with him. What I know is that I most certainly did not intend to injure him. I only wanted him to know, before he walked away from me, that I was angry and “speaking” to him the only way I could. Dr. Balkunas’s reaction was itself swift and violent in the extreme, and extremely personal.


Enraged, his face beet-red, he bellowed at the nurses to order guards to take me immediately to the seclusion cell.


“Seclusion! Seclusion! Restraints! Restraints!” he screamed. Before I could do anything or even consent to walk there, I was bodily dragged down the hall by my injured shoulder to one of the most horrifying seclusion cells I have ever seen. There were two cells, actually, each lockable from the outside, completely barren and cold except for a concrete slab of a bench set into the wall, with a plastic mattress on it. Nothing else. No commode, no bedpan, nothing but two cameras in the ceiling, but no obvious way for me to communicate with anyone. They locked me in, locked the second door across the other room, so I was thoroughly alone and soundproofed from the rest of the unit, and then turned their backs and walked away.


I panicked immediately. I urinated on the floor in my panic. I took off my clothes. I screamed — wanting someone to talk to me, I wanted warm dry clothing to wear, but there was no response. I screamed and screamed. Nothing. Nada. Zilch. Not a word. I did not even understand at that time that there was an intercom somewhere that they could hear me through. I thought I was completely alone and abandoned, but for the eye of the camera. So I did what I had to. I knew, yes, I knew, what would happen, I knew this because it was SOP. It was what always happened to me in Connecticut’s torture-chamber hospitals. But I was freezing in there with the A/C on full bore and at 108 pounds and a history of frostbite I could not tolerate being cold. Furthermore, with neither a watch nor any clock on the wall, I had no inkling as to how long they would keep me there. It might be two hours or twenty, or it might be three days. All I knew was that I could not tolerate the isolation, one, and two, I could not survive the freezing temperature.


So I took the flimsy johnnie I had taken off and I rolled it into a rope and tied it around my neck. I pulled on it, as if to strangle myself. This was a futile endeavor of course, because I couldn’t keep pulling on it without eventually letting go and then I’d breathe again. I didn’t want to die. I just wanted it to look outwardly as if I were strangling myself so someone would come in to check on me. Then finally I thought I would be able to explain that I was freezing cold and just please please please would someone give me a blanket?

Well, would that anyone were so reasonable! But no such luck…

Oh, yes, the intercom did crackle to life eventually and someone interrupted. “Pamela, take that away from your neck. Now.” I gestured to indicate I was freezing. The voice spoke again, “If you don’t remove that from your neck, we will restrain you.” I answered silently but clearly, “I need something for warmth!”   No doubt you can guess that this was a battle I was destined to lose…as it was designed to be.


Eventually, but not so quickly as to show that they had any truly serious concerns about my safety, guards and nurses entered the room, along with a gurney. Grabbing me, injuring my right shoulder as well as my left in the process, they hoisted me onto the gurney. Without even covering my nude body, they locked me into leather restraint cuffs, wresting me into a painful and illegal spread-eagle position, despite my groans of pain and protest. Then to cap it off, they refused me a blanket. Someone tossed a small towel over my private parts and that was all. I was summarily injected with three punishment drugs and an aide was positioned at the door. Then the goon squad trooped out.


I screamed in rage for at least ten minutes. The aide just looked away, pointedly ignoring me. When I finally quieted, I tried to signal my desperate need for water and for warmth, but the aide pretended she did not understand me. But she did understand me and when she finally acknowledged my requests, which I mimed with difficulty from the restraints, she refused, stating that a blanket was unsafe, a pillow unnecessary and that it was my own screaming that had made me thirsty.


The experience of mechanical four-point restraints – leather cuffs that are tightened around the wrists and ankles to shackle a patient to a bed – or being isolated by force in a freezing seclusion cell has to be universally terrifying and traumatizing. Nevertheless, both cell and/or four-point restraints are quickly employed to curb loudness and “undesirable behaviors” at the Hospital of Central Connecticut on Grand Street in New Britain. I know this because I was subjected to both seclusion and 4-point restraints multiple times in May and June of 2014, despite being admitted with a previous diagnosis of chronic paranoid schizophrenia, and documented PTSD, triggered by precisely these methods of “behavioral control.”


Bizarrely, Dr. Michael E. Balkunas wrote on my chart, “Patient mis-perceives her treatment as traumatic.” Well, maybe so, but I think it is nearly by definition traumatic to be forced to defecate in one’s own clothing while shackled to a bed for 19 hours nearly daily, which is what they did at Hartford Hospital’s Institute of Living in the winter of 2013. This was after I was told to lie down and place my own limbs in the leather cuffs (“as a consequence but not a punishment”) for walking away from the very same “Side Room” that I had just been assured was “not a seclusion room unless you call it a seclusion room.”


Again, maybe I mis-perceived being grabbed and held face-down and nearly suffocated numerous times by staff at Yale New Haven Psychiatric Hospital in August 2013, where they would twice or three times a day forcibly inject into my buttocks 10 milligrams of Haldol, a known drug of torture. Maybe this was just kindliness that I misunderstood as traumatic, maybe it was merely a “psychotic mis-perception” on my part? Maybeand then again, maybe not.


Nevertheless, the fact remains that in the ED of New Britain’s HOCC, a security guard in May 2014, grabbed me by my left shoulder immediately after he was warned by the nurse that it was my left shoulder that had a rotator cuff tear.

My New Britain chart records that I was admitted to that hospital, (and to the IOL and others) with a detailed Psychiatric Advance Directive, the first page of which states that seclusion, 4-point restraints and forced medication invariably result in regression to “primitive states and severe worsening of symptoms.” My PAD also makes several concrete suggestions how better to deal with me when I am upset and in crisis. Even though I spent many hours on this document, Psychiatric Advance Directives are virtually worthless in Connecticut and doctors can and do ignore them freely.


Perhaps because of this, HOCC staff literally forced me (“escorted me”) to seclusion and/or restrained me multiple times. They even had male guards strip me naked “for safety’s sake,” and even though I put up no resistance, they had the same male guards four- point me, separating my limbs into a spread-eagle position – a visual rape they clearly enjoyed — while still naked and shackled me into leather restraint cuffs without even covering me first.


Is it any wonder that what resulted was someone who would wash her hair with her own urine, defecate on the floor of her 24-hour-videotaped bedroom and smear feces on the wall? Yet the esteemed Dr. Balkunas, the director of W-1, the general psychiatry unit at HOCC claimed that my trauma was imaginary. Why? Because treatment cannot be traumatic, so he contends. He simply never got the connection between my later horrendous decompensation and this so-called “therapy.” Maybe he never appreciated that he was torturing me, like a person who ripped the wings off butterflies as a child. Someone like that would not have understood how those creatures suffer either.


I moved to Vermont shortly after being released from New Britain Hospital. No hospital in Vermont has felt the need to seclude or restrain me in any such fashion. In fact they do not diagnose me as having any personality disorder either. I have now moved from the Central Vermont Medical Center to Meadowview Recovery Residence in Brattleboro, where they offer residential and unmistakably kind, non-coercive treatment for both schizophrenia, and for the PTSD that resulted from this horrific treatment.


My grave concern however is that there are people still being tortured in HOCC’s W-1 unit for General Psychiatry, on Grand Street in New Britain. I did not leave Connecticut just to forget about this. Justice must be served in order for change to happen.


I tried to file a complaint through the ADA with the Department of Justice about HOCC’s ED and their refusal to provide me a means to communicate but I never heard back from them, although it is just possible they called my cell phone which has ceased to function…


I beg of you to respond to this email. Please help, and please do something to change New Britain’s HOCC use of torture, and the situation at W-1 in particular. Although I am somewhat constrained in Vermont at present, I would assist in any fashion I possibly can.

Thank you,


Pamela Spiro Wagner

Closing Down

Wagblog is going off-line. Maybe we will return, maybe not. It won’t a great loss to the world in any event. Too many words, too much garbage…

As Lao Tzu was said to have written, “Much talk means much exhaustion, better far it is to keep your thoughts.” Well, I shut up vocally many weeks ago, and it was indeed better for everyone around me…so now maybe if I also cease this incessant blather it will be another improvement for the world.

Sorry for everything. Mea culpa, mea maxima culpa.




Over the seasons of my sixties

and unwillingly

suddenly silent

no wonders spark in my visual brain.

But a reason why’s no wonder.

For so many years schooled

into naming everything

words and sounds categorize the world

and wordify my senses.

Precipice, for instance,

with its sliced peaks.

And acrid’s encaustic, that bite on my tongue.

Even blench

somehow leaves me paler

and more livid than before.

But there are descents into being speechless

for reasons besides pathology.

Although these may not seem any reason

or even be

reason enough, to many,

who believe only talking out pain aloud

makes sense.

Sensible or senseless

I know when shutting up is preventive.

or at least is less insane

than trying to be heard

by those inured to hurting

or being hurtful

when they indeed would rather hurt me

than pay heed, having heard me.

But if silence as you claim

overspeaks the chattering air

why do you refuse

to hear all I cannot use

my voice to say.


Tidal Wave ATC (Artist Trading Card)
Tidal Wave ATC (Artist Trading Card)


Lori Carlson over at her WordPress blog, one of several, AS THE FATES WOULD HAVE IT, wrote this lovely passage about why she has to write:

“I enjoy reading poetry and prose that inspires me, that wrenches at my heart, and that puts me in the grip of Knowing — that silent moment when what someone else has written rings so true with you, that you are in complete awe. That is the way I write, or at the very least, I strive to write that way. And so I have made it my life’s goal to write poetry and short fiction, to give back to others the passion that fuels my soul.”


My response to Lori was this: “Passion pushes life to its purest pitch. A passionate enthusiasm is not pathological, as some might have us believe when we are caught up in its grip…Never believe them. Without passion, poetry is just a dim simulacrum of itself, veiled but without mystery, deaf not just to the world but to itself as well.”


Best wishes, Lori, and every one of you writers out there who might have been told to “cool it” or to stop dreaming and “get real.” Best wishes for all the dreams and all the passion your life can encompass, brim over with and then more! more! YES! MORE!

Praying For Foolishness: A Poem


My father spoke of atheism as if it were a religion,

pounding the points of his argument into the dinner table,

spilling the salt with the seed of his own bad temper.

He raised me to be an atheist, too,

and I learned well the commandments of godlessness.

But at night in bed I suffered for it and was penitent

memorizing prayers buy the pages

glossing the psalms with a litany of pleas

that somehow God would find me, small as I was,

and make me a believer,

and, though a prodigal daughter, much loved, much loved.

How I longed for the sweet blow of grace

coming upon me like a hammer on a nail,

or a beggar on a penny

or raindrops on the parched red clay

turned to rust in the arid fields of my soul.


One night – I was under the covers saying the Lord’s Prayer

with a lengthy meditation for each line –

my father, making the rounds, heard me.

What are you doing? he asked, more awful than the God I longed for.

I told him, expecting punishment,

expecting a lecture on the purity of the godless intellect.

He stood a while in silence

while I waited for the one blow I didn’t want.

Then he said, laughing,

you’ll grow out of such foolishness, I hope.


I didn’t grow out of it.

Though I never found God and stopped looking for Him

I remember my father’s laughter,

the hard, cold sneer of it,

laughter at his daughter longing for God

and hoping for love

that would come like a thief in the night.


Now that I am older I know that belief’

doesn’t fall like a hammer

that the beggar is always penniless

and that rainfall soon evaporates returning to the cloud.

Atheism is a creed I have lived by, learned by,

and have at times been comforted by.

but if God should ever find me

I pray for foolishness.



Two Poems

Audobon Field Guide Barred Owl
Audubon Field Guide Barred Owl


Dear R, you who have asked me,

via my Service Offer (“I write personal poems”),

to “create” you a poem, can’t know,

when my second late night email

fails to elicit a prompt response,

how my certainty of rejection hammers me

into old penances, and how I tinfoil walls

and barricades against my extruded poisons.

Then when your emails resume the next day

mentioning your little white house,

a she-owl who watches you with soulful eyes

and your growing “sense of despair”

I imagine a woman of mature years,

alone, though perhaps through choices

not always made freely. So to meet you

I navigate unfamiliar and unpaved roads

parking behind a half-built barn

and a muddy old green Subaru.

Younger than I expect, you’ve moved here

to escape precisely what we never discuss.

You reference only the need for peace of mind,

and a relief from startling triggers.

Nevertheless, I understand your need to know

that spirit-familiar, the barred she-owl, Strix varia,

roosting on a white pine bough

outside your window all winter,

less guardian than too starving to move away

or predate the small animals atop the ice layer

between her and proper voles held in safety beneath.

Only when deep-freeze breaks in early March

and a shadow swoops silently across your pane,

do you know who’s won the battle,

and cheer for a raptor’s kill that saves her life.

The world, after all, is all about killing or being eaten,

which is true even in the human world

where your neighbors stalk you with barking dogs,

and talk nights, beneath your bedroom window

of that woman next door, who is not like them,

with her window salad garden and that owl.

Fearful, blind, they believe that hoot owls

harbinger death. Instead you try to see

the way a mythical Owl might see,

through cold and black of night

for clarity, for lucency, for whatever it is

that warms the living embers

and rem-embers your mind to peace.


This next poem describes the present situation, which continues…with the following explanations.

In the Greek myth, Philomela is raped and has her tongue cut out by Tereus, the husband of her sister Procne. Rendered mute, Philomela weaves a tapestry detailing the crime to inform her sister, who, enraged, takes revenge on Tereus. At the end of the story, both Procne and Philomela are transformed into birds.  In some versions of this story, Philomela turns into a female nightingale, while in others she becomes a swallow. However, neither of these birds can sing.

Jerry Mahoney and Charlie McCarthy are two famous American ventriloquists’ dummies


I haven’t spoken out loud for many weeks,

bullied by “voices” to a frightened into myself silence.

Still, what does “speechless” mean

in these days of text-to-speech software,

with its choice of Vikki or Samantha or Victoria voices,

especially when I’m possessed of a blog and writing fluency

enough to speak my mind to my heart’s content?

Even so, being mute is not a manner of speaking.

Yet I tell you I can talk. Nothing physical impedes

my tongue, or locks my lips

except my brain’s hallucinated snarls,

Jerry Mahoney and Charlie McCarthy thrown

into surrounding shadows

ordering up this stoppage, blockage, blockade.

Now, like Stevens’ fire-fangled bird at the end of the mind

feathered unlucky, tarred, locked in golden cage

my voice remains only a memento

of everything

I wanted to say, but could not get out,

I couldn’t get it out, I could not get it out…

Toltec Wisdom (and a Little of My Own!)

Despair on Park Bench
Despair on Park Bench

Sometimes you never know who it is that has a disabling mental “illness,” not even when they are right in front of you. Not every person who has been diagnosed with schizophrenia, for instance, looks like it or pushes a shopping cart laden with household “extranea” down the street, homeless, filthy, and laughing wildly to themselves…Not that this is so terrible either, frankly. We should all not be so quick to judge. And no, we should not judge even this notion of the homeless-shopping-cart-person as “bad” or “wrong” — not until we know the person and understand what he or she wants from life and his or her history. I am not saying that anyone should freeze to death from exposure, or suffer from hunger or from any unwanted basic deprivation, only that no one understands the life conditions of another until you talk with them and come to know that person…

Too many people make assumptions that are wrong and/or erroneous based only on what they want and are comfortable with, not on what the other person needs and wants. Believe me, I know, having been there way more often than I wish and experienced it from that “other side.” Far too many times have people claimed to be “helping me” and have only hurt me! It is not that I think they were badly intentioned, so much as that they were only thinking about how they felt or would feel. They were not being truly empathic, not giving an inch or a nanosecond to trying to think about how I, personally, did feel nor for that matter asking me what I might want or need at that moment.

I want to remind people to remember that “ASSUME makes an ASS out of U and Me..” so instead of assuming anything about another person, especially someone who has an apparent mental “illness” or someone who at any rate seems somehow “different” from the people who are familiar to you, ask them questions…Find out what they want and what makes them comfortable!

As Toltec spiritual advisor Don Miguel Ruiz tells us in THE FOUR AGREEMENTS, which is the best book of its sort I have ever read, you can and should ask any question you want to, so long as you are honestly prepared to accept the answer.

By the way, the Second Agreement, in his book, an Agreement I find so fundamentally important, is Do Not Take Anything Personally. By taking things personally — that way danger and disappointment and all distress lies. Truly this is so. People are all in their own little bubbles, taking their own lives personally and frankly, think about that! We are only on the periphery of everyone else’s thinking and living, and in a very real way they cannot ever know us as we know ourselves, they can only know us through the lens of their own lives, their own bubbles. This revelation can be freeing if you let it…

That is why we should not take anything personally — because other people are too busy doing the same thing and not seeing us as we are, but only as adjuncts to their lives and thinking. If we truly knew and accepted this, we would be free from a great deal of angst and upset. But of course this is a very difficult thing to do…to free ourselves of the notion that we are as important in others lives as we are in our own. No, they are the important actors on their own stage, we are not. We really need to get over thinking that we are prima donnas in everyone’s drama as well as our own…Is not our own life enough? I should think so. Who would want to star in more than one drama at a time?

Hartford COurant Article (that won’t be) about Michael E Balkunas, MD, Chief of psychiatry at HOCC

Patients placed in Seclusion or Restraints are to be debriefed afterwards. To see standards of care, see below this reprint article.

I moved to Brattleboro Vermont on February 4, 2015, leaving my home state of Connecticut where I’ve lived for nearly 60 years. l had to move because of the horrific psychiatric abuses I experienced in Connecticut hospitals and my fear that if ever I were hospitalized again I would be killed.

I feel guilty, however, just getting out without accomplishing something to stop what continues to happen in Connecticut psychiatric units and hospitals.

The experience of mechanical four-point restraints – leather cuffs that are tightened around the wrists and ankles to immobilize a patient to a bed – or being isolated by force in an often freezing seclusion cell is almost universally terrifying. Nevertheless, both cell and/or restraints are routinely employed to curb loudness and undesirable behaviors at the Hospital of Central Connecticut on Grand Street in New Britain. I know this because I was subjected to both seclusion and restraints multiple times in the spring of 2014, despite a diagnosis of chronic paranoid schizophrenia, as well as PTSD that was triggered by precisely this sort of thing.

Bizarrely, the hospital psychiatrist, Dr Michael E Balkunas, treating me at HOCC challenged my PTSD diagnosis. “Patient misperceives her treatment as traumatic,” he wrote in my chart. Well, maybe so, but I don’t know how I can be accused of misperceiving three entire days callously abandoned alone, tied to the four posts of a metal bedstead at U-Conn’s Dempsey Hospital (for trying to escape the locked unit) as anything but brutality, even if it was in the 1990s. I also think it is nearly by definition traumatic to be forced to defecate in one’s own clothing while tied to a bed which is what they did at Hartford Hospital’s Institute of Living in the winter of 2013. This was after I was told to lie down and place my own limbs in the leather cuffs (“as a consequence but not a punishment”) for walking away from the very same “Side Room” that I had just been assured was “not a seclusion room unless you call it a seclusion room.”

Again, maybe I misperceived being grabbed and held face-down and nearly suffocated numerous times by staff at Yale Psychiatric Hospital in August 2013, who injected 10-20 milligrams of Haldol, a known drug of torture. Maybe this was just kindliness that I misunderstood as traumatic, maybe it was merely a “psychotic misperception” on my part? Maybe, and maybe not.

Nevertheless, the fact remains that in the ED of New Britain’s HOCC, a security guard in May 2014, grabbed me by my left shoulder immediately after he was warned by the nurse that it was my left shoulder that had a rotator cuff tear.

My New Britain chart records that I was admitted to that hospital, and to the IOL and others with a detailed Psychiatric Advance Directive, the first page of which states that seclusion, four-point restraints and forced medication invariably result in regression to “primitive states and severe worsening of symptoms.” It also makes several concrete suggestions how better to deal with me when I am upset. Even though I spent many hours on this document, Psychiatric Advance Directives have no legal clout in Connecticut and doctors can and do ignore them freely.

Perhaps because of this, HOCC staff literally forced me (“escorted me”) to seclusion and/or restrained me again and again. They took to stripping me “for safety’s sake,” and even though I put up no resistance, they had the male guards spread-eagle my limbs while still naked and put restraint cuffs on without even covering me.

Is it any wonder that what resulted was someone who would wash her hair in her own urine, defecate on the floor of her room and smear feces on the wall? Yet Dr Balkunas, the director of W-1, the general psychiatry unit at HOCC claimed that my trauma was imaginary. Why? Because treatment cannot be traumatic. He simply never got the connection between my horrendous decompensation and his so-called “therapy.” Maybe he never appreciated that he was torturing me, like a person who ripped the wings off butterflies as a child. Someone like that would not have understood how those creatures suffer either.


These are the NURSING De-Briefing standards for after restraints and/or seclusion:



Standard: As soon as possible, following the release from seclusion or restraint, the nurse, the person and others as appropriate should participate in a debriefing.

– See more at:

Intent: A debriefing is done with persons who have been secluded or placed in restraints to:

  • Discuss and clarify any possible misperceptions the person may have concerning the incident.
  • Ascertain the person’s willingness to involve family or other caregivers in a debriefing to discuss and clarify their perceptions as well as identify additional alternatives or treatment plan modifications.
  • Support the person’s re-entry into the milieu.
  • Identify alternative interventions to reduce the potential for additional episodes.
  • Hear and record the person’s perspective on the episode.
  • Ascertain that the person’s rights and physical well-being were addressed during the episode and advise the person of processes to address perceived rights grievances.
  • Address any trauma that may have occurred as a result of the incident.
  • Modify the treatment plan as needed.

NONE of this was EVER done, ANYWHERE, in any hospital I have ever been in. Why? Because they all knew perfectly well what they had done to me and WHY…Not because I was dangerous to anyone, but as punishment…Naturally they did not want me to have a chance to tell anyone.

– See more at:

The Marionette and the Golden Pot: Does Art Mean Anything?

Maybe this is meaningful, since I was thinking about con-artists, and maybe not…but I did not know what I was drawing or why until hours later…

Does Art Mean Something and if so, What?
Does Art Mean Something and if so, What? (unfinished drawing)

"While I breathe, I hope"– Surviving Schizophrenia


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